Resources and Links

Patient Resources

Several resources are available online. Below is a list that may be of interest to you and your family. If you would like help locating a resource not listed here, please contact us. Please note: information found on these websites is not a substitute for medical advice from a healthcare professional.

General support and information

  • UNC Comprehensive Cancer Support Program (CCSP) – provides a calendar with local support groups and events, as well as a list of cancer support resources for patients and caregivers in North Carolina
    • Breast Cancer Support Group for Young Women – support group for women ages 18-45 with breast cancer. Held monthly. For details, please email Michelle Manning at mmanning@unc.edu
    • ICANcer: Teen & Parent Support Group – support group for UNC Pediatric Hematology-Oncology patients and their siblings (ages 13+); parents meet separately. Held monthly. For details, please email Stephanie Mazze at stephanie.mazze@unchealth.unc.edu
  • Genetics Home Reference  - general information about genetic conditions in easy-to-understand language
  • Instapeer – mobile phone app that matches cancer patients, survivors, and caregivers with an anonymous peer for support
  • Trust It or Trash It? – a tool designed to help you evaluate health information you find online
  • Find A Genetic Counselor – a tool for locating a genetics specialist by zip code

Family history tools

Hereditary breast and/or ovarian cancer

  • FORCE (Facing Our Risk of Cancer Empowered) – support and information for people and families at increased risk for breast cancer, ovarian cancer, and other related types of cancer
  • Bright Pink – information, resources, and forum for young women at increased risk for breast cancer, ovarian cancer, and other related types of cancer

Hereditary paraganglioma and pheochromoctyoma syndrome

  • Pheo Para Alliance – provides information and research opportunities for people who have a pheochromocytoma or paraganglioma
  • Pheo Para Troopers – provides information and support for people who have a pheochromocytoma or paraganglioma

Lynch syndrome and other hereditary colorectal cancer syndromes

  • Hereditary Colon Cancer Takes Guts – support, information, and resources for people and families who have hereditary colorectal cancer conditions, including Lynch syndrome, familial adenomatous polyposis (FAP), juvenile polyposis syndrome, MUTYH-associated polyposis (MAP) syndrome, and others
  • The Colon Cancer Alliance – information and support for people and families impacted by colorectal cancer

Resources for young adults who have been diagnosed with cancer

Von Hippel-Lindau syndrome (VHL)

  • The VHL Alliance – support, information, and resources for people and families who have VHL

Birt-Hogg-Dube syndrome (BHD)

  • The BHD Foundation - support, information, and resources for people and families who have BHD

Smoking cessation assistance programs