About HHT

Hereditary Hemorrhagic Telangiectasia (HHT) or Osler-Weber-Rendu Syndrome is an inherited disorder characterized by the abnormal development of blood vessels resulting in telangiectasias of the skin and mucous membranes and larger visceral (organ) arterial-venous malformations (AVMs) found predominantly in the lungs, brain, liver and gastrointestinal tract. Overall, HHT can be a debilitating disorder that has a significant impact on the quality of life in affected individuals.