The CDC established a national public health surveillance project called the Universal Data Collection (UDC) system, which was carried out by the CDC and federally funded hemophilia treatment centers (HTCs) from 1998 through 2011.
Biogen Idec, Inc. has won U.S. approval for its long-acting hemophilia B treatment Alprolix, the U.S. Food and Drug Administration announced on Friday, March 28, 2014.
Dr. Helen C. Okoye of Nigeria has received a Reach-the-World Fellowship offered by the International Society on Thrombosis and Haemostasis to receive training at the UNC-Chapel Hill Hemophilia & Thrombosis Center.
Old System, New Players, New Directions -- May 15-17, 2014
The effects of this new low-molecular-weight synthetic heparin can be quickly reversed, unlike the effects of low-molecular-weight heparin currently in use.
UNC hematologists Nigel S. Key, Alice D. Ma, and Stephan Moll are included in the latest compilation of The Best Doctors in America database. Only five percent of doctors in America earn this honor, decided by impartial peer review.
Alice Ma, MD, from the UNC Division of Hematology/Oncology, was on the Choosing Wisely task force for the American Society of Hematology (ASH). ASH recently released a list of the five most common hematologic tests, treatments, and procedures that should be questioned by patients and physicians.
An article entitled "Clinical features and management of haemophilic pseudotumours: a single US centre experience over a 30-year period" was published in the January 2014 issue of the journal Haemophilia. The authors are UNC clinicians Ming Y. Lim, MBBChir; Brenda Nielsen, MSN; Alice Ma, MD; and Nigel Key, MD.
On December 23, the U.S. Food and Drug Administration approved Tretten (coagulation factor XIII A-subunit [recombinant]) for use in the routine prevention of bleeding in adults and children who have congenital Factor XIII A-subunit deficiency, a rare clotting disorder.
Researchers package specialized blood platelets with genes that express clotting factor, leading to fewer bleeding events.
Registration is now open for the 7th UNC Symposium on Hemostasis, May 15-17, 2014, in Chapel Hill. The symposium is entitled "Old System, New Players, New Directions."
The UNC TarHealers walking team raised $1,675 for Hemophilia of North Carolina, the state chapter of the National Hemophilia Foundation.
The Clot Connect program was featured prominently in an "Impact Your World" segment on CNN and Headline News.
Gene therapy research at UNC-Chapel Hill is spotlighted in National Hemophilia Foundation publication
This month's "HemAware" magazine from the National Hemophilia Foundation features a story on gene therapy research.
On September 27, 2013, Hemophilia of North Carolina Board President Steve Peretti announced that Charlene Cowell has been named as HNC's new Executive Director effective September 19.
UNC's Drs. Nigel Key and Alice Ma discuss hemophilia and Drs. Ma and Paul Monahan explain von Willebrand disease on this educational television show.
Dr. Buckner received a two-year award (July 1, 2013 - June 30, 2015) to support clinical and research training in bleeding and clotting disorders.
Paul E. Monahan, MD, received the Leadership in Research Award from the National Hemophilia Foundation at NHF's 65th anniversary reception in New York City on June 12.
Dr. Lim has been chosen as a recipient of the ASH Training Award for Fellows for the period July 1, 2013 - June 30, 2014. The title of her project is "'Contribution of erythrocytes to thrombin generation in sickle cell disease."