On behalf of the SSC Scientific Subcommittee on Factor VIII & Factor IX, Dr. I. Warrier (Detroit) is maintaining a registry of patients with severe allergic reactions to Factor IX-containing products.  Drs. P.M. Mannucci and L. Bergamaschini (Milano) have prepared a study protocol to evaluate such reactions.

Those who have previously un-reported patients with severe reactions to FIX may obtain a registry form from Dr. Warrier (24 hour toll-free)  at tel: 1-888-877-0767 or by fax 1 313 745 5237.

To enroll in the study and to obtain the protocol document, contact the investigators by email: < pmmannucci@libero.it > or
by fax: 390 2 551 609.