A Celebration to honor advocates who give rare disease patients a voice in state and federal policy was held on Wednesday night, November 16th in Washington DC.
The Rare Disease Observatory will integrate and make readily available large data sets researchers need to study rare diseases and improve the lives of millions of people in the United States.
Approach developed in part by UNC’s Dr. Steven Gray restored enzyme function and extended survival time in treated mice.
The Health Care Heroes Award Ceremony was held March 17, 2016.
Triangle Business Journal on Monday announced the 21 winners for its of the 2016 Health Care Heroes Awards.
Laura King Edwards will run the Martha’s Vineyard 20 Miler Road Race in honor of her younger sister Taylor.
Dr. Bruce Cairns, John Stackhouse Distinguished Professor of Surgery and Director of the North Carolina Jaycee Burn Center in the UNC School of Medicine, serves as Chair of the Council.
Charlotte Charity Inspires New Law Designed to Spur Treatments for Rare Diseases and Economic Growth for North Carolina
Law Will Establish an Advisory Council on Rare Diseases at the University of North Carolina at Chapel Hill