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5th Annual Rare Voice Award

5th Annual Rare Voice Award

A Celebration to honor advocates who give rare disease patients a voice in state and federal policy was held on Wednesday night, November 16th in Washington DC.

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UNC, NC State join national $11-million data project to tackle rare diseases

The Rare Disease Observatory will integrate and make readily available large data sets researchers need to study rare diseases and improve the lives of millions of people in the United States.

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Dr. Steven J. Gray Recipient of Health Care Heroes Award

Dr. Steven J. Gray Recipient of Health Care Heroes Award

Triangle Business Journal on Monday announced the 21 winners for its of the 2016 Health Care Heroes Awards.

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Runner carries a sister’s love every step of the way

Laura King Edwards will run the Martha’s Vineyard 20 Miler Road Race in honor of her younger sister Taylor.

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Rare Disease Advisory Council Appointments Confirmed

Rare Disease Advisory Council Appointments Confirmed

Dr. Bruce Cairns, John Stackhouse Distinguished Professor of Surgery and Director of the North Carolina Jaycee Burn Center in the UNC School of Medicine, serves as Chair of the Council.

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