Center for Genomics & Society interdisciplinary seminar on: African Ancestry Biobank
"The African Ancestry Biobank: A Proposed Member Driven Model" An Interdisciplinary Seminar from The Center for Genomics and Society
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The creation of a DNA biobank dedicated to the collection and novel statistical analysis of samples from individuals of African ancestry may contribute to greater study population diversification in genetic research and more broadly significant discoveries. The detailed registry of information accompanying the biological samples provides the capability for further research, re-contact of biobank members (those who contribute to the African Ancestry Biobank) as well as coordination with existing registries. Concerns regarding subjects’ rights, informed consent, ownership and commercialization of genetic material, privacy and possible repercussions of donation require immediate attention and necessitate careful consideration in the design and implementation of DNA biobanks. Dr. Fortson will discuss the scientific basis for this type of specialized biobank, the planning process and proposed stages of development, in addition to the ways in which a "member-driven" design model seeks to address important ethical, legal and social implications of biobanking in genetic research.