The Thurston Arthritis Research Center was proud to work with the North Carolina Chapter of the Lupus Foundation of America to bring the Cruel Mystery National Tour Bus to UNC Hospitals. The tour bus is part of The Help Us Solve the Cruel Mystery National Tour, which is a national education and awareness program launched by the Lupus Foundation of America to address this urgent national public health issue. The conversation about lupus begins with questions about lupus symptoms painted in bold letters all over the outside of the bus. The first of its kind tour bus has interactive exhibits to help visitors learn about lupus through the experiences of people who live with lupus. Nationwide stops of the tour also includes an education program for patients with lupus and their families, and a state-of-the-science continuing medical education (CME) program for healthcare professionals.
Christine John-Fuller, President and CEO of the North Carolina Chapter of the Lupus Foundation was on hand with her volunteers to give tours of the bus, answer questions, and advocate for people with Lupus. Rick Armstrong from WRAL-TV in Raleigh came out to interview local lupus patient, KeKe Grady; UNC Pediatric Nephrologist, Dr. Keisha Gibson, and Christine John Fuller. (See the story and video here.
Many people stopped by to pick up information, ask questions or get their picture taken with the big purple glasses. One woman stopped to get information after she had seen the bus on the highway and was answering yes to all the questions painted on the side of the bus.
Thanks to Mary Anne Dooley, MD, MPH; Brenda Meier and Deb MacDonald of the Thurston Arthritis Research Center for organizing and volunteering at this event.
The Cruel Mystery tour spent the weekend at various locations in Raleigh and Durham. The tour began in California on December 1 and has visited Colorado, Texas and will be in Virginia, Ohio, Michigan, Massachusetts, before ending in New York.
For more information about Lupus or the Cruel Mystery Tour, go to cruelmystery.org.
Volunteers, Brenda Meier (far left) and Tehesia Wilcox (second from right) providing lupus information.
Maggie Maloney and Christine John-Fuller, Lupus Foundation of America.
KeKe Grady, Lupus advocate.
Dr. Keisha Gibson, UNC Pediatric Nephrologist.