SSC Registries/Databases:

Bernard-Soulier Syndrome

Clotting Factor Concentrates

Factor IX Database

Allergic Reactions to Factor IX Concentrates

Factor XIII Database

Glanzmann's Thrombasthenia Database
These databases of clinical, biochemical, and mutation information on patients with Glanzmann thrombasthenia are maintained by Deborah L. French at the Mount Sinai School of Medicine, New York, NY and Alan Nurden at the Hôpital Cardiologique, Pessac, France.

Protein S Deficiency: A Database of Mutations - First Update

Rare bleeding disorder database

International Registry on recurrent venous thromboembolism in anticoagulated patients with cancer

Registry on Thrombosis and Thrombotic Risk in Women Receiving Ovarian Stimulation for Pregnancy - (word document)
From the ISTH Subcommittee on Women's Health Issues

SeveN Bleep (Seven A in Nonhemophilia bleeding in Pediatrics):
A web-based Clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding using rFVIIa in children without haemophilia.

Splanchnic Vein Thrombosis International Registry

VWF Database
The new ISTH VWF database was presented at the Boston 2002 SSC Meeting by Dr. Anne Goodeve.  This link is hosted by the University of Sheffield, UK.

Platelet Type von Willebrand Disease Registry/Database

Von Willebrand Factor Assays in Von Willebrand Disease

International Registry on Acquired von Willebrand Syndrome

Non-Immune Thrombocytopenia Registry--for inquiries please contact Dr. Amy Geddis at ageddis@ucsd.edu

Working Party on Desmopressin in the Management of Von Willebrand Disease: Biological Response Versus Clinical Efficacy
A World Wide Prospective Observational Study

An International Registry of Pregnancies among Women with Mechanical Heart Valves