TraCS Registry Research Forum

Sharing best practices, successes, and challenges of patient registry research at UNC

When Apr 24, 2014
from 07:30 AM to 08:30 AM
Where Brinkhous-Bullitt Room 219
Contact Name
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Agenda

  • Key design principles of patient registries: Conversation based on a Scotland cystic fibrosis registry described in “The How (and Why) of Disease Registers” by Anil Mehta
  • Spotlight on lessons learned from a UNC or RTI registry: Our Fragile X World
  • Plan for future meetings and future UNC registry “spotlights”

Please RSVP by sending an email to Lisa Gehtland, MD, (lgehtland@rti.org) with “Yes” or “Maybe.”


The NC TraCS Institute, is the integrated home of the NIH Clinical and Translational Science Awards (CTSA) program at UNC-Chapel Hill, grant 1UL1TR001111. The CTSA program is led by the NIH’s National Center for Advancing Translational Sciences (NCATS).

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