"At the heart of the Cystic Fibrosis Foundation is our commitment to help people with CF live longer, healthier lives. Our efforts have increased life expectancy for people with the disease by more than 30 years. But that is not enough... we will not rest until we find a cure. Every step of the way, we are here for you."
-Robert J Beall, PhD, President & CEO, Cystic Fibrosis Foundation
Quality of care
It takes a team to treat cystic fibrosis. To ensure that you get the right experts on your team no matter where you live, the CF Foundation supports and accredits a network of more than 110 CF care centers nationwide. At your center, physicians, nurses, social workers, dietitians, respiratory therapists and other care providers are dedicated to working closely with you to give you the finest care and the latest treatments available.
Cystic fibrosis is a complex disease. Whether a family member has just been diagnosed or you have been living with CF, you probably have a lot of questions.
Our website, www.cff.org is your online sources for the latest information about CF treatment, care and research. On cff.org, you can find:
- Facts about CF lung health and nutrition
- Tips for staying healthy
- Resources for managing CF at school and in the workplace
- And more
Have a question? Call or email us any time at (800) FIGHT CF or firstname.lastname@example.org.
Did you know you can learn about CF from leading experts across the U.S.?
Watch informational Web casts on topics like germs, infection control and patient assistance programs. www.cff.org/LivingWithCF/Webcasts/
Medications and treatments for CF can be expensive- and navigating health insurance can be difficult.
The CF Services Pharmacy is a full-service pharmacy that saves you time and money by delivering specialty CF medications right to your door. The pharmacy provides:
- One-stop shopping for all your CF prescriptions
- Ability to refill and track the status of an order online or by phone
- Free shipping on orders totaling more than $25.
The pharmacy also helps patients obtain the maximum reimbursement from their health insurance and drug plans. Visit www.cfservicespharmacy.com or call (800) 541-4959.
Having trouble affording CF medications? The CF Patient Assistance Foundation can help with co-payment and co-insurance assistance for eligible medications and devices. Visit www.cfpaf.org or call (888) 315-4154.
The CF Legal Information Hotline can answer your questions about health insurance coverage and provide information about the laws that protect the rights of people with CF. Email CFLegal@cff.org or call (800) 622-0385.
The Cystic Fibrosis Foundation is the world's leader in the search for a cure. We fund more CF research than any other organization in the world, and nearly every CF drug available today was made possible because of our support. To ensure that potential treatments can advance swiftly through development so that they are made available to you as soon as possible, we created a CF clinical trials network that is the largest in the world for the study of CF treatments. Right now, numerous promising drugs are in development. Any one of them or a combination of them could have a major impact on people with CF.
Want to learn more about promising drugs now in clinical trials? Visit www.cff.org/clinicaltrials.
Join us. Sign up today at www.cff.org/welcome. You'll receive our e-newsletter Connections, regular email updates about breaking CF news and information on ways to get involved. You may also fill this form and mail it to the address below.
Local Contact Information
The CF Foundation Carolinas Chapter
2301 Stonehenge Drive, Suite 200
Raleigh, NC 27615
Phone: (919) 845-2155
Fax: (919) 845-2404
Want to join the CF community online? Join the CF Foundation on Facebook: www.facebook.com/cysticfibrosisfoundation.
Carolinas Chapter Events: http://www.cff.org/Chapters/carolinas/ChapterEvents/
Carolinas Chapter News: http://www.cff.org/Chapters/carolinas/ChapterNews/
Carolinas Chapter Volunteer Opportunities: http://www.cff.org/Chapters/carolinas/VolunteerOpportunities/
[click here] to download the CF Foundation Brochure (pdf)