{"id":2823,"date":"2019-12-17T11:24:50","date_gmt":"2019-12-17T16:24:50","guid":{"rendered":"https:\/\/www.med.unc.edu\/elsi\/?p=2823"},"modified":"2020-02-03T13:14:54","modified_gmt":"2020-02-03T18:14:54","slug":"searching-for-a-cure-sickle-cell-disease-gene-editing","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/elsi\/2019\/12\/searching-for-a-cure-sickle-cell-disease-gene-editing\/","title":{"rendered":"Searching for a Cure: Sickle Cell Disease Gene-Editing"},"content":{"rendered":"

January 30 | 12pm | BOND G100\u00a0 —<\/p>\n

 <\/p>\n

Vence Bonham, Jr. J. D.<\/p>\n

Associate Investigator, Division of Intramural Research, Senior Advisor to the NHGRI Director on Genomics and Health Disparities, National Human Genome Research Institute\u00a0 —<\/p>\n

 <\/p>\n

The National Academies of Sciences 2017 Human Genome Editing Report identified seven principles that should undergird the oversight systems, research surrounding, and eventual clinical uses of human genome editing: (1) promoting well-being, (2) transparency, (3) due care, (4) responsible science, (5) respect for persons, (6) fairness, and (7) transnational cooperation. Each principle is essential to implementation of somatic genome editing for Sickle Cell Disease. Vence Bonham will examine the principles of fairness and transnational cooperation in the race to develop new curative treatments for sickle cell disease.\u00a0 —<\/p>\n

 <\/p>\n

Event sponsored by the Center for Genomics and Society (CGS) and the Center for Health Equity Research (CHER).<\/p>\n

Click here for flyer<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

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