{"id":2968,"date":"2021-02-12T11:13:24","date_gmt":"2021-02-12T16:13:24","guid":{"rendered":"https:\/\/www.med.unc.edu\/elsi\/?p=2968"},"modified":"2021-10-19T11:25:01","modified_gmt":"2021-10-19T15:25:01","slug":"elsiconversations","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/elsi\/2021\/02\/elsiconversations\/","title":{"rendered":"ELSIconversations"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2982 size-full\" src=\"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-Resize.png\" alt=\"\" width=\"828\" height=\"544\" srcset=\"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-Resize.png 828w, https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-Resize-300x197.png 300w, https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-Resize-768x505.png 768w, https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-Resize-600x394.png 600w\" sizes=\"auto, (max-width: 828px) 100vw, 828px\" \/><\/p>\n<h5><strong>ELSIconversations <\/strong>debuts with\u00a0a six-week series of themed one-hour networking discussions\u00a0on ELSI research.\u00a0Join us from<strong> 12:00-1:00 pm ET \/ 9:00-10:00 am PT<\/strong> starting Friday, February 26.<\/h5>\n<p>&nbsp;<\/p>\n<h4><strong>Ethics Practices for the Direct-to-Consumer Industry<\/strong><strong>\u00a0&#8211; <a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJAscuuqrTkjHdLrLHGcrvNwCMuWQR9uX5VA\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\">REGISTER<\/a><\/strong><\/h4>\n<p><strong>Moderator: Mildred Cho<\/strong><\/p>\n<ul>\n<li><strong>Emily Bullis &amp; Anjali Shastri:<\/strong> A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research <em>(link coming soon)<\/em><\/li>\n<li><strong>Rachele Hendricks-Sturrup:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/qualitative-study-develop-privacy-and-nondiscrimination-best-practice-framework-personalized\">A Qualitative Study to Develop a Privacy and Nondiscrimination Best Practice Framework for Personalized Wellness Programs<\/a><\/li>\n<li><strong>Ben Wills:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/platform-heals-ethical-issues-direct-consumer-telepharmacies\">Platform Heals? Ethical Issues in Direct-to-consumer Telepharmacies<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>This initial series of discussions focuses on presentations that were originally accepted for the 2020 ELSI Congress (which was then canceled due to the pandemic). These presentations are now available as 15-minute videos.<strong> Please watch the videos you are interested in before attending\u00a0the related discussion.\u00a0\u00a0They will not be shown during the discussion.<\/strong><\/p>\n<p>The presenters will answer questions about their research and take part in an open discussion with all attendees.\u00a0 Please bring your questions, join the discussion, and expect to network with your colleagues. We hope you will make new connections and start new conversations on ELSI research.<\/p>\n<p>The schedule of the talks and a link\u00a0to each video are\u00a0below. <strong>Please register\u00a0for each ELSIconversations event<\/strong> you would like to attend. Contact us at\u00a0<a href=\"mailto:info@elsihub.org\" target=\"_blank\" rel=\"noopener noreferrer\">info@elsihub.org<\/a>\u00a0with any questions.<\/p>\n<p>Please note: by\u00a0registering for an ELSIhub event participants and attendees agree to abide by the ELSIhub\u00a0<a href=\"https:\/\/elsihub.org\/news\/code-conduct\">Code of Conduct<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>March 5 &#8211;\u00a0Community Perspectives on Recruitment to Genetics Research\u00a0&#8211;<a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJwpcuiqqjIvGtbuuPto6_-XlDKcdvAeLNSE\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\"> REGISTER<\/a><\/strong><\/p>\n<p><strong>Moderator: Sandra Soo-Jin Lee<\/strong><\/p>\n<ul>\n<li><strong>Megan Doerr &amp; Joon-Ho Yu:<\/strong><a href=\"https:\/\/elsihub.org\/video\/developing-pathways-community-led-research-big-data-content-analysis-stakeholder-interviews\"> Developing Pathways for Community-led Research with Big Data: A Content Analysis of Stakeholder Interviews<\/a><\/li>\n<li><strong>Ilaria Galasso:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/democratic-approaches-precision-medicine-and-genetics-research-comparing-inclusiveness-and\">Democratic approaches to precision medicine and genetics research: comparing inclusiveness and effectiveness of PPI practices to the pursuit of the public good<\/a><\/li>\n<li><strong>Catherine Hammack-Aviran: <\/strong><a href=\"https:\/\/elsihub.org\/video\/sexual-and-gender-minorities-perspectives-genetic-privacy-and-identity-research\">Sexual and Gender Minorities\u2019 Perspectives on Genetic Privacy and Identity in Research<\/a><\/li>\n<li><strong>Stephanie Kraft:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/what-does-respect-persons-really-mean-practical-considerations-demonstrating-respect-genomics\">What does \u2018respect for persons\u2019 really mean? Practical considerations for demonstrating respect in genomics research<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong>March 19 &#8211;\u00a0Oversight of Human-Animal Chimera Research: Views of Scientists, Researchers, Oversight Committees, and the Public\u00a0&#8211; <a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJYvcuuqpzkqGNYPviDUEkiDfvjCNSV5w4D1\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\">REGISTER<\/a><\/strong><\/p>\n<p><strong>Moderator: Mildred Cho<\/strong><\/p>\n<ul>\n<li><strong>Kaitlynn Craig:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/when-dogs-play-cards-interviews-scientists-researchers-and-oversight-committee-members\">When Dogs Play Cards: Interviews with Scientists, Researchers, and Oversight Committee Members on Ethical Guidelines for Human-Animal Chimera Research<\/a><\/li>\n<li><strong>Ben Wills &amp; Isabel Bolo:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/which-public-what-comments-analysis-public-comments-human-animal-chimera-research-submitted\">Which Public, What Comments? An Analysis of Public Comments on Human-Animal Chimera Research Submitted to the National Institutes of Health<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong>March 26 &#8211;\u00a0Identifying Best Practices for Clinical Genetics Delivery\u00a0&#8211; <a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJclfuugqzsqE9aDcIdjKuuvcOQ7QPgI2H5X\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\">REGISTER<\/a><\/strong><\/p>\n<p><strong>Moderator: Sandra Soo-Jin Lee<\/strong><\/p>\n<ul>\n<li><strong>Nora Henrikson:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/patient-and-family-preferences-direct-contact-health-system-invite-cascade-screening\">Patient and family preferences on direct contact by a health system to invite cascade screening<\/a><\/li>\n<li><strong>Kelly Ormond:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/defining-critical-components-informed-consent-genetic-testing\">Defining the Critical Components of Informed Consent for Genetic Testing<\/a><\/li>\n<li><strong>Natalie Pino:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/racial-and-ethnic-classification-clinic-it-just\">Racial and Ethnic Classification in the Clinic: Is it Just?<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong>April 2 &#8211;\u00a0Issues at the Intersection of Identity and Genome Science\u00a0&#8211; <a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJUkfuuprjguH9C-BDo-fUy8fQaQr9K5KUSk\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\">REGISTER<\/a><\/strong><\/p>\n<p><strong>Moderator: Mildred Cho<\/strong><\/p>\n<ul>\n<li><strong>Felicity Boardman:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/human-germline-genome-editing-and-identity-politics-genetic-disability\">Human Germline Genome Editing and the Identity Politics of Genetic Disability<\/a><\/li>\n<li><strong>Catherine Hammack-Aviran: <\/strong><a href=\"https:\/\/elsihub.org\/video\/direct-consumer-genetic-testing-public-perspectives-and-considerations-regarding-ancestry-and\">Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong>April 16 &#8211;\u00a0Challenges and Opportunities in Implementing Precision Medicine at the National Scale\u00a0&#8211; <a class=\"ext\" href=\"https:\/\/zoom.us\/meeting\/register\/tJUuf-GoqDsrHdUFONpSY9ckTJCXHl_XQkfb\" target=\"_blank\" rel=\"noopener noreferrer\" data-extlink=\"\">REGISTER<\/a><\/strong><\/p>\n<p><strong>Moderator: Sandra Soo-Jin Lee<\/strong><\/p>\n<ul>\n<li><strong>Katherine D. Blizinsky:\u00a0<\/strong><a href=\"https:\/\/elsihub.org\/video\/part-1-ethical-legal-and-social-implications-elsi-frontiers-precision-medicine-research\">Part 1. Ethical, Legal and Social Implications (ELSI) on the frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program<\/a><\/li>\n<li><strong>Subhashini Chandrasekharan:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/part-2-ethical-legal-and-social-implications-elsi-frontiers-precision-medicine-research\">Part 2. Ethical, Legal and Social Implications (ELSI) on the frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program<\/a><\/li>\n<li><strong>Tierry M. Laforce: <\/strong><a href=\"https:\/\/elsihub.org\/video\/using-implementation-research-tool-guide-implementation-non-invasive-prenatal-screening\">Using an implementation research tool to guide the implementation of non-invasive prenatal screening<\/a><\/li>\n<li><strong>Mary A. Majumder:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/part-1-assessing-access-care-clinical-sequencing-evidence-generating-research-consortium\">Part 1. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges<\/a><\/li>\n<li><strong>Amanda M. Gutierrez:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/part-2-assessing-access-care-clinical-sequencing-evidence-generating-research-consortium\">Part 2. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges<\/a><\/li>\n<li><strong>Sara L. Ackerman:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/part-3-assessing-access-care-clinical-sequencing-evidence-generating-research-consortium\">Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges<\/a><\/li>\n<li><strong>Sara J. Knight:<\/strong> <a href=\"https:\/\/elsihub.org\/video\/part-4-assessing-access-care-clinical-sequencing-evidence-generating-research-consortium\">Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges<\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>ELSIconversations debuts with\u00a0a six-week series of themed one-hour networking discussions\u00a0on ELSI research.\u00a0Join us from 12:00-1:00 pm ET \/ 9:00-10:00 am PT starting Friday, February 26. &nbsp; Ethics Practices for the Direct-to-Consumer Industry\u00a0&#8211; REGISTER Moderator: Mildred Cho Emily Bullis &amp; Anjali Shastri: A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic &hellip; <a href=\"https:\/\/www.med.unc.edu\/elsi\/2021\/02\/elsiconversations\/\" aria-label=\"Read more about ELSIconversations\">Read more<\/a><\/p>\n","protected":false},"author":4284,"featured_media":2967,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[],"class_list":["post-2968","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","odd"],"acf":[],"featured_image":"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-crop-e1613146674288.png","featured_image_medium":"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-crop-e1613146674288-300x66.png","featured_image_medium_large":"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-crop-768x169.png","featured_image_large":"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-crop-e1613146674288.png","featured_image_thumbnail":"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2021\/02\/ELSIconversations_Graphic_ELSIhub-crop-e1613146674288-150x89.png","featured_image_alt":"","category_details":[{"name":"Uncategorized","link":"https:\/\/www.med.unc.edu\/elsi\/category\/uncategorized\/"}],"tag_details":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/posts\/2968","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/users\/4284"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/comments?post=2968"}],"version-history":[{"count":0,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/posts\/2968\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/media\/2967"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/media?parent=2968"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/categories?post=2968"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.med.unc.edu\/elsi\/wp-json\/wp\/v2\/tags?post=2968"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}