{"id":3341,"date":"2024-01-26T14:34:32","date_gmt":"2024-01-26T19:34:32","guid":{"rendered":"https:\/\/www.med.unc.edu\/elsi\/?p=3341"},"modified":"2024-03-27T17:06:08","modified_gmt":"2024-03-27T21:06:08","slug":"elsi-friday-forum-dec-12-12p-et-3-2","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/elsi\/2024\/01\/elsi-friday-forum-dec-12-12p-et-3-2\/","title":{"rendered":"ELSI Friday Forum | Feb. 9 | 12p ET"},"content":{"rendered":"<div class=\"pdl-xs zm-col zm-col-19\" data-v-f68abd7c=\"\">\n<h3>Twisted Helix: Can Public-Private Partnerships in Large-Scale Genomic Projects Be Fair and Equitable?<\/h3>\n<\/div>\n<p>&#8212;&#8211;<\/p>\n<div class=\"pdl-xs w-sp zm-col zm-col-18\" data-v-d509169a=\"\">Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research projects such as the Human Pangenome Reference Consortium, and the Earth BioGenome, Human Cell Atlas, and BRAINshare projects, which include commercial uses of data and samples. Five decades after biotechnology became a Big Thing in Silicon Valley, both Cambridges, and elsewhere, concerns about pricing and access to health goods and services breed skepticism that the innovation ecosystem is fair and equitable. We will discuss several concrete cases in which public-private partnerships have raised ethical issues and address whether and how ELSI scholars might be useful in making the system more transparent, fair, and trustworthy.<\/div>\n<div data-v-d509169a=\"\"><\/div>\n<div class=\"pdl-xs w-sp zm-col zm-col-18\" data-v-d509169a=\"\">To continue the conversation please join fellow audience members\u00a0for an informal discussion in a Zoom meeting immediately following the forum. The link will be placed in the Zoom Chat during the forum. For those who cannot attend the live event, the forum will be recorded and archived on the\u00a0ELSIhub Video page.<\/div>\n<div data-v-d509169a=\"\"><\/div>\n<div class=\"pdl-xs w-sp zm-col zm-col-18\" data-v-d509169a=\"\">Live captioning services will be provided by a certified Communication Access Realtime Translation (CART) captioner and available via closed captioning. Closed captions will also be available for the recording.<\/div>\n<div data-v-d509169a=\"\"><\/div>\n<div class=\"pdl-xs w-sp zm-col zm-col-18\" data-v-d509169a=\"\">By registering for an ELSIhub event, attendees agree to abide by the ELSIhub Code of Conduct: <a href=\"https:\/\/elsihub.org\/news\/code-conduct\">https:\/\/elsihub.org\/news\/code-conduct<\/a><\/div>\n<p>&nbsp;<\/p>\n<h4><strong>Click <a href=\"https:\/\/us06web.zoom.us\/webinar\/register\/9217056202858\/WN_GDoQGlqAQN-QuW2gKxvV6w#\/registration\">here<\/a> to register.<\/strong><\/h4>\n","protected":false},"excerpt":{"rendered":"<p>Twisted Helix: Can Public-Private Partnerships in Large-Scale Genomic Projects Be Fair and Equitable? &#8212;&#8211; Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research projects such as the Human Pangenome Reference Consortium, and the Earth BioGenome, Human Cell &hellip; <a href=\"https:\/\/www.med.unc.edu\/elsi\/2024\/01\/elsi-friday-forum-dec-12-12p-et-3-2\/\" aria-label=\"Read more about ELSI Friday Forum | Feb. 9 | 12p ET\">Read more<\/a><\/p>\n","protected":false},"author":4284,"featured_media":2955,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[],"class_list":["post-3341","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","odd"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ELSI Friday Forum | Feb. 9 | 12p ET - ELSI at UNC<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/elsi\/2024\/01\/elsi-friday-forum-dec-12-12p-et-3-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ELSI Friday Forum | Feb. 9 | 12p ET - ELSI at UNC\" \/>\n<meta property=\"og:description\" content=\"Twisted Helix: Can Public-Private Partnerships in Large-Scale Genomic Projects Be Fair and Equitable? &#8212;&#8211; Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. 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