{"id":3697,"date":"2025-09-26T14:24:21","date_gmt":"2025-09-26T18:24:21","guid":{"rendered":"https:\/\/www.med.unc.edu\/elsi\/?p=3697"},"modified":"2025-09-26T14:24:21","modified_gmt":"2025-09-26T18:24:21","slug":"elsi-friday-forum-2025-sept-12p-2","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/","title":{"rendered":"ELSI Friday Forum | Oct. 10 | 12p ET"},"content":{"rendered":"

Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease<\/h3>\n

with panelists\u00a0Jessica Mozersky, PhD (Washington University in St. Louis) and\u00a0Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania)<\/p>\n

The return of genetic and biomarker information in Alzheimer\u2019s disease (AD) research has emerged as a pressing ethical question as disease-modifying treatments become available and expectations around disclosure shift. This ELSI Friday Forum brings together two leading ELSI researchers whose work interrogates these tensions. Jessica Mozersky, PhD (Washington University in St. Louis) will draw on findings from her recent cohort study evaluating who declines to learn AD biomarker results and will discuss the ethical significance of respecting the \u201cright not to know.\u201d Ruth Ottman, PhD (Columbia University) will present findings from her longitudinal community-based study of Latinos in northern Manhattan that examines the psychosocial, behavioral, and cognitive impacts of learning late-onset Alzheimer\u2019s disease risk based on APOE genotype disclosure versus nondisclosure. Moderated by Emily Largent, JD, PhD, RN (University of Pennsylvania), this session will explore the ethical, cultural, and policy implications of returning AD genetic risk information.<\/p>\n

<\/h4>\n

Click here<\/a> to register.<\/h4>\n","protected":false},"excerpt":{"rendered":"

Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists\u00a0Jessica Mozersky, PhD (Washington University in St. Louis) and\u00a0Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer\u2019s disease (AD) research has emerged as a pressing … Read more<\/a><\/p>\n","protected":false},"author":4284,"featured_media":2955,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[7],"tags":[],"class_list":["post-3697","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-and-events","odd"],"acf":[],"yoast_head":"\nELSI Friday Forum | Oct. 10 | 12p ET - ELSI at UNC<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ELSI Friday Forum | Oct. 10 | 12p ET - ELSI at UNC\" \/>\n<meta property=\"og:description\" content=\"Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists\u00a0Jessica Mozersky, PhD (Washington University in St. Louis) and\u00a0Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer\u2019s disease (AD) research has emerged as a pressing … Read more\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\" \/>\n<meta property=\"og:site_name\" content=\"ELSI at UNC\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-26T18:24:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2020\/10\/elsi-hub.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"164\" \/>\n\t<meta property=\"og:image:height\" content=\"116\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Kriste Kuczynski\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Kriste Kuczynski\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\"},\"author\":{\"name\":\"Kriste Kuczynski\",\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/#\/schema\/person\/059316b1fe3d3ecfa713c9ae84356898\"},\"headline\":\"ELSI Friday Forum | Oct. 10 | 12p ET\",\"datePublished\":\"2025-09-26T18:24:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\"},\"wordCount\":200,\"image\":{\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.med.unc.edu\/elsi\/wp-content\/uploads\/sites\/540\/2020\/10\/elsi-hub.jpg\",\"articleSection\":[\"News and Events\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\",\"url\":\"https:\/\/www.med.unc.edu\/elsi\/2025\/09\/elsi-friday-forum-2025-sept-12p-2\/\",\"name\":\"ELSI Friday Forum | Oct. 10 | 12p ET - 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