On October 16, 2015, CBS Evening News aired a story on Lori Sames’ search for a cure for her daughter, Hannah, who suffers from Giant Axonal Neuropathy disease (GAN), a rare disease which causes nerves to die and muscles to stop working. Lori and her husband, Matt, founded Hannah’s Hopeto raise money to fund the research to find a cure. Now, after several years and an enormous level of dedication, the first gene therapy clinical trial for GAN is underway, with the research headed by Dr. Steven Gray at the UNC Gene Therapy Center and the trial being done by Dr. Carsten Bonnemann at NIH.
You can watch the CBS news video and read the full story here:
http://www.cbsnews.com/news/a-mothers-quest-to-find-cure-for-rare-genetic-defect/
