{"id":2396,"date":"2017-09-20T17:18:32","date_gmt":"2017-09-20T21:18:32","guid":{"rendered":"https:\/\/www.med.unc.edu\/genetics\/for-patients-and-providers\/unc-cancer-genetics-clinic\/resources-and-links\/"},"modified":"2018-04-02T12:39:49","modified_gmt":"2018-04-02T16:39:49","slug":"resources-and-links","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/genetics\/resources-and-links\/","title":{"rendered":"Resources and Links"},"content":{"rendered":"<p><!-- portlet_header --><\/p>\n<p><!-- portlet_above --><\/p>\n<p><!-- description --><\/p>\n<h2>Patient Resources<\/h2>\n<p>Several resources are available online. Below is a list that may be of interest to you and your family. If you would like help locating a resource not listed here, please contact us. Please note: information found on these websites is <span style=\"text-decoration: underline\">not<\/span> a substitute for medical advice from a healthcare professional.<\/p>\n<p><strong>General support and information<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/unclineberger.org\/patientcare\/support\/ccsp\/calendar-events-info\">UNC Comprehensive Cancer Support Program (CCSP)<\/a> \u2013 provides a calendar with local support groups and events, as well as a list of cancer support resources for patients and caregivers in North Carolina\n<ul>\n<li>Breast Cancer Support Group for Young Women \u2013 support group for women ages 18-45 with breast cancer. Held monthly. For details, please email Michelle Manning at <a href=\"mailto:mmanning@unc.edu\">mmanning@unc.edu<\/a><\/li>\n<li>ICANcer: Teen &amp; Parent Support Group \u2013 support group for UNC Pediatric Hematology-Oncology patients and their siblings (ages 13+); parents meet separately. Held monthly. For details, please email Stephanie Mazze at stephanie.mazze@unchealth.unc.edu<\/li>\n<\/ul>\n<\/li>\n<li><a href=\"https:\/\/ghr.nlm.nih.gov\">Genetics Home Reference<\/a> &#8211; general information about genetic conditions in easy-to-understand language<\/li>\n<li><a href=\"https:\/\/stupidcancer.org\/app\/\">Instapeer<\/a> \u2013 mobile phone app that matches cancer patients, survivors, and caregivers with an anonymous peer for support<\/li>\n<li><a href=\"http:\/\/www.trustortrash.org\/\">Trust It or Trash It?<\/a> \u2013 a tool designed to help you evaluate health information you find online<\/li>\n<li><a href=\"http:\/\/www.nsgc.org\/page\/find-a-gc-search\">Find A Genetic Counselor<\/a> \u2013 a tool for locating a genetics specialist by zip code<\/li>\n<\/ul>\n<p><strong>Family history tools<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/www.hhs.gov\/familyhistory\">The Surgeon General\u2019s Family Health History Initiative<\/a> \u2013an interactive tool for recording your family history information<\/li>\n<\/ul>\n<p><strong>Hereditary breast and\/or ovarian cancer<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/www.facingourrisk.org\">FORCE (Facing Our Risk of Cancer Empowered)<\/a> \u2013 support and information for people and families at increased risk for breast cancer, ovarian cancer, and other related types of cancer<\/li>\n<li><a href=\"http:\/\/www.brightpink.org\">Bright Pink<\/a> \u2013 information, resources, and forum for young women at increased risk for breast cancer, ovarian cancer, and other related types of cancer<\/li>\n<\/ul>\n<p><strong>Hereditary paraganglioma and pheochromoctyoma syndrome<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/www.pheo-para-alliance.org\">Pheo Para Alliance<\/a> \u2013 provides information and research opportunities for people who have a pheochromocytoma or paraganglioma<\/li>\n<li><a href=\"http:\/\/www.pheoparatroopers.org\">Pheo Para Troopers<\/a> \u2013 provides information and support for people who have a pheochromocytoma or paraganglioma<\/li>\n<\/ul>\n<p><strong>Lynch syndrome and other hereditary colorectal cancer syndromes<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/www.hcctakesguts.org\">Hereditary Colon Cancer Takes Guts<\/a> \u2013 support, information, and resources for people and families who have hereditary colorectal cancer conditions, including Lynch syndrome, familial adenomatous polyposis (FAP), juvenile polyposis syndrome, <i>MUTYH-<\/i>associated polyposis (MAP) syndrome, and others<\/li>\n<li><a href=\"http:\/\/www.ccalliance.org\">The Colon Cancer Alliance<\/a> \u2013 information and support for people and families impacted by colorectal cancer<\/li>\n<\/ul>\n<p><strong>Resources for young adults who have been diagnosed with cancer<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/unclineberger.org\/patientcare\/support\/aya-support\">Adolescent and Young Adult (AYA) Cancer Support Program<\/a> &#8211; individualized support for young people (ages 13-26) at UNC Hospitals. For more information, please contact Lauren Lux at lauren_lux@med.unc.edu or 984-974-8686<\/li>\n<li><a href=\"https:\/\/beloudsophie.org\">Be Loud! Sophie Foundation<\/a> \u2013 support and events for adolescent and young adult patients and their families at UNC Hospitals<\/li>\n<li><a href=\"http:\/\/www.stupidcancer.org\">Stupid Cancer<\/a> \u2013 support for young people who have been diagnosed with cancer<\/li>\n<\/ul>\n<p><strong>Von Hippel-Lindau syndrome (VHL)<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.vhl.org\">The VHL Alliance<\/a> \u2013 support, information, and resources for people and families who have VHL<\/li>\n<\/ul>\n<p><strong>Birt-Hogg-Dube syndrome (BHD)<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.bhdsyndrome.org\">The BHD Foundation<\/a> &#8211; support, information, and resources for people and families who have BHD<\/li>\n<\/ul>\n<p><strong>Smoking cessation assistance programs<\/strong><\/p>\n<ul>\n<li><a href=\"http:\/\/www.smokefree.gov\">Smoke Free<\/a><\/li>\n<li><a href=\"http:\/\/www.quitlinenc.com\">QuitlineNC<\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Patient Resources Several resources are available online. Below is a list that may be of interest to you and your family. If you would like help locating a resource not listed here, please contact us. Please note: information found on these websites is not a substitute for medical advice from a healthcare professional. General support &hellip; <a href=\"https:\/\/www.med.unc.edu\/genetics\/resources-and-links\/\" aria-label=\"Read more about Resources and Links\">Read more<\/a><\/p>\n","protected":false},"author":22429,"featured_media":0,"parent":0,"menu_order":5,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-2396","page","type-page","status-publish","hentry","odd"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Resources and Links | Department of Genetics<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/genetics\/unc-cancer-genetics-clinic\/resources-and-links\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources and Links | Department of Genetics\" \/>\n<meta property=\"og:description\" content=\"Patient Resources Several resources are available online. 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