{"id":16752,"date":"2026-03-06T13:09:50","date_gmt":"2026-03-06T18:09:50","guid":{"rendered":"https:\/\/www.med.unc.edu\/genetics\/?p=16752"},"modified":"2026-03-06T13:09:50","modified_gmt":"2026-03-06T18:09:50","slug":"haendel-publishes-health-data-policy-paper-in-science","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/","title":{"rendered":"Haendel Publishes Health Data Policy Paper in Science"},"content":{"rendered":"
\"Melissa
Eric Hurwitz, Melissa Haendel, Julie McMurry, Shawn O\u2019Neil, and Anita Walden<\/figcaption><\/figure>\n

Dr. Melissa Haendel (Distinguished Professor, Genetics) is first author on a newly published paper in Science<\/a>\u00a0titled \u201cGoverning real-world health data as a public utility\u201d.<\/p>\n

Additional authors from the Department of Genetics include Drs. Eric Hurwitz, Julie McMurry, Shawn O\u2019Neil, and Anita Walden. \u00a0The policy paper proposes that “health data should be governed through federated, standards-based, community-driven models that reflect their public benefit, empower patients and communities, and foster public trust and participation.”<\/p>\n","protected":false},"excerpt":{"rendered":"

Dr. Melissa Haendel (Distinguished Professor, Genetics) is first author on a newly published paper in Science\u00a0titled \u201cGoverning real-world health data as a public utility\u201d.<\/p>\n","protected":false},"author":28418,"featured_media":16753,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[541,549,601,616,636],"class_list":["post-16752","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-haendel","tag-hurwitz","tag-mcmurry","tag-oneil","tag-walden","odd"],"acf":[],"yoast_head":"\nHaendel Publishes Health Data Policy Paper in Science | Department of Genetics<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Haendel Publishes Health Data Policy Paper in Science | Department of Genetics\" \/>\n<meta property=\"og:description\" content=\"Dr. Melissa Haendel (Distinguished Professor, Genetics) is first author on a newly published paper in Science\u00a0titled \u201cGoverning real-world health data as a public utility\u201d.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\" \/>\n<meta property=\"og:site_name\" content=\"Department of Genetics\" \/>\n<meta property=\"article:published_time\" content=\"2026-03-06T18:09:50+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"982\" \/>\n\t<meta property=\"og:image:height\" content=\"837\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Jonathon Cornett\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Jonathon Cornett\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\"},\"author\":{\"name\":\"Jonathon Cornett\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/0291e0ce388bbf007b03c591fc542716\"},\"headline\":\"Haendel Publishes Health Data Policy Paper in Science\",\"datePublished\":\"2026-03-06T18:09:50+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\"},\"wordCount\":101,\"publisher\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg\",\"keywords\":[\"Haendel\",\"Hurwitz\",\"McMurry\",\"O'Neil\",\"Walden\"],\"articleSection\":[\"News\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\",\"name\":\"Haendel Publishes Health Data Policy Paper in Science | Department of Genetics\",\"isPartOf\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg\",\"datePublished\":\"2026-03-06T18:09:50+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg\",\"contentUrl\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg\",\"width\":982,\"height\":837,\"caption\":\"Eric Hurwitz, Melissa Haendel, Julie McMurry, Shawn O\u2019Neil, and Anita Walden\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.med.unc.edu\/genetics\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Haendel Publishes Health Data Policy Paper in Science\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#website\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/\",\"name\":\"UNC Department of Genetics\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.med.unc.edu\/genetics\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#organization\",\"name\":\"UNC Department of Genetics\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2018\/11\/Genetics_logo_png_h.png\",\"contentUrl\":\"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2018\/11\/Genetics_logo_png_h.png\",\"width\":982,\"height\":151,\"caption\":\"UNC Department of Genetics\"},\"image\":{\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/0291e0ce388bbf007b03c591fc542716\",\"name\":\"Jonathon Cornett\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/98e4bc231fa6040a28baebf18731553c0d5371994059fc719ab66b8c323ce609?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/98e4bc231fa6040a28baebf18731553c0d5371994059fc719ab66b8c323ce609?s=96&d=mm&r=g\",\"caption\":\"Jonathon Cornett\"},\"description\":\"Genetics\",\"url\":\"https:\/\/www.med.unc.edu\/genetics\/author\/jcornett\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Haendel Publishes Health Data Policy Paper in Science | Department of Genetics","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/","og_locale":"en_US","og_type":"article","og_title":"Haendel Publishes Health Data Policy Paper in Science | Department of Genetics","og_description":"Dr. Melissa Haendel (Distinguished Professor, Genetics) is first author on a newly published paper in Science\u00a0titled \u201cGoverning real-world health data as a public utility\u201d.","og_url":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/","og_site_name":"Department of Genetics","article_published_time":"2026-03-06T18:09:50+00:00","og_image":[{"width":982,"height":837,"url":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","type":"image\/jpeg"}],"author":"Jonathon Cornett","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Jonathon Cornett","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#article","isPartOf":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/"},"author":{"name":"Jonathon Cornett","@id":"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/0291e0ce388bbf007b03c591fc542716"},"headline":"Haendel Publishes Health Data Policy Paper in Science","datePublished":"2026-03-06T18:09:50+00:00","mainEntityOfPage":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/"},"wordCount":101,"publisher":{"@id":"https:\/\/www.med.unc.edu\/genetics\/#organization"},"image":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage"},"thumbnailUrl":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","keywords":["Haendel","Hurwitz","McMurry","O'Neil","Walden"],"articleSection":["News"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/","url":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/","name":"Haendel Publishes Health Data Policy Paper in Science | Department of Genetics","isPartOf":{"@id":"https:\/\/www.med.unc.edu\/genetics\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage"},"image":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage"},"thumbnailUrl":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","datePublished":"2026-03-06T18:09:50+00:00","breadcrumb":{"@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#primaryimage","url":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","contentUrl":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","width":982,"height":837,"caption":"Eric Hurwitz, Melissa Haendel, Julie McMurry, Shawn O\u2019Neil, and Anita Walden"},{"@type":"BreadcrumbList","@id":"https:\/\/www.med.unc.edu\/genetics\/haendel-publishes-health-data-policy-paper-in-science\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.med.unc.edu\/genetics\/"},{"@type":"ListItem","position":2,"name":"Haendel Publishes Health Data Policy Paper in Science"}]},{"@type":"WebSite","@id":"https:\/\/www.med.unc.edu\/genetics\/#website","url":"https:\/\/www.med.unc.edu\/genetics\/","name":"UNC Department of Genetics","description":"","publisher":{"@id":"https:\/\/www.med.unc.edu\/genetics\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.med.unc.edu\/genetics\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/www.med.unc.edu\/genetics\/#organization","name":"UNC Department of Genetics","url":"https:\/\/www.med.unc.edu\/genetics\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/logo\/image\/","url":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2018\/11\/Genetics_logo_png_h.png","contentUrl":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2018\/11\/Genetics_logo_png_h.png","width":982,"height":151,"caption":"UNC Department of Genetics"},"image":{"@id":"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/0291e0ce388bbf007b03c591fc542716","name":"Jonathon Cornett","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.med.unc.edu\/genetics\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/98e4bc231fa6040a28baebf18731553c0d5371994059fc719ab66b8c323ce609?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/98e4bc231fa6040a28baebf18731553c0d5371994059fc719ab66b8c323ce609?s=96&d=mm&r=g","caption":"Jonathon Cornett"},"description":"Genetics","url":"https:\/\/www.med.unc.edu\/genetics\/author\/jcornett\/"}]}},"featured_image":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","featured_image_medium":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All-300x256.jpg","featured_image_medium_large":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All-768x655.jpg","featured_image_large":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All.jpg","featured_image_thumbnail":"https:\/\/www.med.unc.edu\/genetics\/wp-content\/uploads\/sites\/481\/2026\/03\/Haendel-and-All-150x150.jpg","featured_image_alt":"Melissa Haendel, Eric Hurwitz, Julie McMurry, Shawn O\u2019Neil, and Anita Walden","category_details":[{"name":"News","link":"https:\/\/www.med.unc.edu\/genetics\/category\/news\/"}],"tag_details":[{"name":"Haendel","link":"https:\/\/www.med.unc.edu\/genetics\/tag\/haendel\/"},{"name":"Hurwitz","link":"https:\/\/www.med.unc.edu\/genetics\/tag\/hurwitz\/"},{"name":"McMurry","link":"https:\/\/www.med.unc.edu\/genetics\/tag\/mcmurry\/"},{"name":"O'Neil","link":"https:\/\/www.med.unc.edu\/genetics\/tag\/oneil\/"},{"name":"Walden","link":"https:\/\/www.med.unc.edu\/genetics\/tag\/walden\/"}],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/posts\/16752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/users\/28418"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/comments?post=16752"}],"version-history":[{"count":1,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/posts\/16752\/revisions"}],"predecessor-version":[{"id":16754,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/posts\/16752\/revisions\/16754"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/media\/16753"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/media?parent=16752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/categories?post=16752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.med.unc.edu\/genetics\/wp-json\/wp\/v2\/tags?post=16752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}