{"id":2278,"date":"2022-05-11T15:22:44","date_gmt":"2022-05-11T19:22:44","guid":{"rendered":"https:\/\/www.med.unc.edu\/healthsciences\/iddhealthservicesstudy\/?page_id=2278"},"modified":"2024-04-08T09:04:41","modified_gmt":"2024-04-08T13:04:41","slug":"the-team","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/healthsciences\/iddhealthservicesstudy\/the-team\/","title":{"rendered":"The Team"},"content":{"rendered":"

Disrupting the Cycle<\/em> is committed to bringing together people with IDD, their care partners, providers, and advocates to develop a culturally affirming model of supports that addresses the needs of this diverse community. The\u00a0Disrupting the Cycle<\/em> team is a true partnership between UNC researchers, co-researchers, and community partners. We are currently developing emerging partnerships in preparation for future stages of this research.<\/p>\n

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UNC Researchers<\/h3>\n

\"Dr.<\/p>\n

We are university researchers, self-advocates and family advocates, practitioners with experience working with people with IDD in community settings, legislators, and people with lived experience as care partners of children (including adult children) with IDD.<\/p>\n<\/div>\n<\/div>\n

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Co-Researchers<\/h3>\n

\"Black<\/p>\n

We partnered directly with minoritized young adults with intellectual and\/or developmental disabilities (IDD) and caregivers. Co-researchers dialogued around health care experiences, mapped their stories, and developed suggestions for community providers.<\/p>\n<\/div>\n<\/div>\n

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Community Partners<\/h3>\n

\"Audience<\/p>\n

Community practitioners and other stakeholders identified themes in their experiences supporting minoritized young adults with IDD, including perceptions of barriers. Community partners engaged in dialogue and narrative construction with the larger research team.<\/p>\n<\/div>\n<\/div>\n<\/div>\n

UNC Researchers<\/h2>\n\n\n\n\n\n\n
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\"HeadshotKhalilah Robinson Johnson, PhD, MS, OTR\/L<\/a>, Principal Investigator<\/p>\n

Dr. Johnson is an Assistant Professor in the Division of Occupational Science and Occupational Therapy at the University of North Carolina at Chapel Hill. She also serves as an affiliate research faculty member at the Virginia Commonwealth University Center for Cultural Experiences in Prevention in Richmond, Virginia. Dr. Johnson’s clinical experience as an occupational therapist working with individuals with intellectual and developmental disabilities has shaped her research interests in the pursuit of justice for those who are often forgotten in the healthcare system. Dr. Johnson has been recognized for her contributions working with and for the IDD community as the recipient of the 2021 MLK Unsung Hero Award. She is also a recipient of the Robert Wood Johnson Foundation Health Equity Scholars for Action Award, which funds this project.<\/td>\n<\/tr>\n

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\"HeadshotKierra Peak, OTR\/L<\/a>, Research Assistant<\/p>\n

Kierra is a doctoral candidate at the University of North Carolina at Chapel Hill in the Division of Occupational Science and Occupational Therapy. Her dissertation work focuses on exploring the complexities of meaningful occupations by examining the occupation of student activism. She is interested in working towards an equitable and accessible society through her research endeavors.<\/td>\n<\/tr>\n

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\"HeadshotSeth Mitchell, OTR\/L<\/a>, Lab Assistant<\/p>\n

Seth is a doctoral student at the University of North Carolina at Chapel Hill in the Division of Occupational Science and Occupational Therapy. He is interested in exploring occupational choice, identity, and community as it relates to identity and justice in society.<\/td>\n<\/tr>\n

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\"HeadshotRebecca “Becky” Parkin, OTR\/L, SWC, ESDM<\/a>, Independent Study Student<\/p>\n

As a doctoral student at the University of North Carolina at Chapel Hill in the Division of Occupational Science and Occupational Therapy, Becky is interested in how the construct of race is learned and reinforced through personal and community-based occupations. More broadly, she is interested in how occupation is negotiated of systemic institutional racism and how this does not translate to health and wellbeing. She hopes to directly address racism and disrupt social inequities in healthcare and beyond.<\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Co-Researchers<\/h2>\n

\"DisruptingWe partnered directly with co-researchers, including minoritized young adults with intellectual and\/or developmental disabilities (IDD) and caregivers. Co-researchers shared narratives around health care experiences, mapped their stories geographically, and developed suggestions for community partners.<\/p>\n