Hemophilia Treatment Centers of North Carolina
There are five Hemophilia Treatment Centers (HTCs) in North Carolina. These centers provide comprehensive care to people of all ages with inherited bleeding disorders, both male and female. These centers belong to a network of approximately 140 federally recognized Hemophilia Treatment Centers in the United States. HTCs provide patient care, education, and clinical research to improve the health and quality of life for people with hemophilia, von Willebrand disease, and other factor deficiencies. Bleeding disorders are rare, and outcomes are best if care is provided by a team of experts working in partnership with you and your family and other medical providers.
Hemophilia Treatment Centers receive federal support from the Health Resources Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC). Funding supports the collection of data used to monitor the health and improve care to people with inherited bleeding disorders.
A team of health care professionals at HTCs offers comprehensive care to patients and their families. Knowledgeable and experienced staff provide state-of-the-art care emphasizing prevention services to help reduce or eliminate complications. The idea of comprehensive care is to provide services to meet all the needs of the patient and their loved ones. Every aspect of the person is addressed to include physical, emotional, psychological, educational/vocational, and financial issues. The team is composed of a hematologist, nurse, social worker, physical therapist, and genetic counselor. HTCs assist in coordinating care and working collaboratively with other health care providers such as orthopedics, infectious disease, dentistry, surgery, and the primary care provider. Many HTCs have their own factor distribution programs/pharmacies that offer lower pricing and provide support to the HTC.
The comprehensive care team provides support, education and training to patients and their families over the lifespan in order to foster independence. The team can also educate schools, health insurers, and employers about what it is like to live with a bleeding disorder. This helps ensure that affected individuals have the best possible outcomes at all life stages.
Since 1975, Hemophilia Treatment Centers have provided good quality care to people with bleeding disorders. Early studies showed that care received through an HTC greatly reduces many hemophilia-related physical and economic effects, including:
- Days hospitalized by 72%
- Hospital visits by 93%
- Average length of hospital day by 7.6 days
- Out-of-pocket expenses by 60%
- Overall expenses by 41% to 63%
- Unemployment by 64%
A more recent study of 3,000 males who received care at an HTC at least once in the three year study period showed:
- A 40% decrease in hemophilia-related illness
- A 40% reduction in bleed-related hospitalizataions.