{"id":2440,"date":"2011-03-14T17:31:49","date_gmt":"2011-03-14T21:31:49","guid":{"rendered":"https:\/\/www.med.unc.edu\/htcenter\/unc-named-12th-us-hht-center-of-excellence-by-the-hht-foundation\/"},"modified":"2025-07-29T12:47:15","modified_gmt":"2025-07-29T16:47:15","slug":"unc-named-12th-us-hht-center-of-excellence-by-the-hht-foundation","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/htcenter\/unc-named-12th-us-hht-center-of-excellence-by-the-hht-foundation\/","title":{"rendered":"UNC named 12th US HHT Center of Excellence by the HHT Foundation"},"content":{"rendered":"<p class=\"lead\">Raj Kasthuri, MD, is director of the new center of excellence for the treatment of hereditary hemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, an inherited disorder of the blood vessels that can cause excessive bleeding.<\/p>\n<div>\n<p><b>Media contact:<\/b> Stephanie Crayton, (919) 951-4758, <a class=\"external-link\" href=\"mailto:%20scrayton@unch.unc.edu\">scrayton@unch.unc.edu<\/a><\/p>\n<p>Monday, March 14, 2011<\/p>\n<p><img decoding=\"async\" class=\"image-inline\" title=\"Raj Kasthuri, MD\" src=\"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri.jpg\" alt=\"Raj Kasthuri\" \/><\/p>\n<p>CHAPEL HILL, N.C. \u2013 Today <a class=\"external-link\" href=\"http:\/\/hht.org\/\">HHT Foundation International<\/a> announced that the <a class=\"external-link\" href=\"http:\/\/www.unc.edu\/\">University of North Carolina at Chapel Hill<\/a> has been selected as the 12th HHT Center of Excellence in the United States.<\/p>\n<p><a class=\"external-link\" href=\"http:\/\/findadoc.unchealthcare.org\/directory\/profile.asp?dbase=main&amp;setsize=10&amp;last=kasthuri&amp;pict_id=1603204\">Raj Kasthuri, MD<\/a>, assistant professor of hematology and oncology in the <a class=\"external-link\" href=\"http:\/\/med.unc.edu\/\">UNC School of Medicine<\/a>, is director of the new center for the treatment of <a class=\"external-link\" href=\"http:\/\/en.wikipedia.org\/wiki\/Hereditary_hemorrhagic_telangiectasia\">hereditary hemorrhagic telangiectasia (HHT)<\/a>. HHT, also known as <a class=\"external-link\" href=\"http:\/\/www.nlm.nih.gov\/medlineplus\/ency\/article\/000837.htm\">Osler-Weber-Rendu syndrome<\/a>, is an inherited disorder of the blood vessels that can cause excessive bleeding. The most common symptom of HHT is bleeding from the nose, but HHT can also cause bleeding from the mouth, tongue, gastrointestinal tract, lungs, skin or other organs.<\/p>\n<p>\u201cDr. Kasthuri has organized a team of specialists at UNC who are knowledgeable in the treatment and care of HHT and have been treating HHT patients for several years. We are really excited about this new collaboration,\u201d said Marianne Clancy, executive director of HHT Foundation International.<\/p>\n<p>HHT affects about 1 of every 5,000 people in the U.S. The number of people with HHT in the U.S. is estimated at 70,000. About 1,700 people in North Carolina have the disorder, which sometimes affects multiple members of the same family, Dr. Kasthuri said. It is estimated that there are about 2,800 additional people with HHT in the surrounding states of South Carolina, Tennessee, Virginia and West Virginia. None of those states have an HHT Center of Excellence.<\/p>\n<p>\u201cI am very excited to lead this multidisciplinary endeavor and look forward to providing care for a population that is underdiagnosed and under-resourced,\u201d Dr. Kasthuri said.<\/p>\n<p>The new HHT Center of Excellence at UNC is housed administratively within the <a class=\"external-link\" href=\"\/radiology\">Department of Radiology<\/a> in the School of Medicine. Members of the center are:<\/p>\n<ul>\n<li><b>Drs. Charles Burke, Matt Mauro and Hortensia Alvarez<\/b> \u2013 Interventional Radiology<\/li>\n<li><b>Dr. Mark Weissle<\/b>r \u2013 Otolaryngology\/Head and Neck Surgery<\/li>\n<li><b>Dr. Jim Evans and Ofri Leitner<\/b> \u2013 Genetics<\/li>\n<li><b>Dr. Douglas Morgan<\/b> \u2013 Gastroenterology<\/li>\n<li><b>Dr. Jimmy Ford<\/b> \u2013 Pulmonology<\/li>\n<li><b>Dr. Brian Jensen<\/b> \u2013 Cardiology<\/li>\n<li><b>Dr. David Huang<\/b> \u2013 Neurology<\/li>\n<li><b>Dr. Anand Germanwala<\/b> \u2013 Neurosurgery<\/li>\n<li><b>Dr. George Blakey<\/b> \u2013 Maxillofacial Surgery (UNC School of Dentistry)<\/li>\n<\/ul>\n<p>The other 11 HHT Centers of Excellence in the U.S. are:<\/p>\n<ul>\n<li><b>Georgia Health Science University HHT Center<\/b> (Augusta, Ga.)<\/li>\n<li><b>Johns Hopkins HHT Center<\/b> (Baltimore, Md.)<\/li>\n<li><b>Mayo Clinic HHT Center <\/b>(Rochester, Minn.)<\/li>\n<li><b>Oregon Health &amp; Science University HHT Center<\/b> (Portland, Ore.)<\/li>\n<li><b>University of California at Los Angeles HHT Center<\/b><\/li>\n<li><b>University of California at San Diego HHT Center <\/b><\/li>\n<li><b>University of Pennsylvania <\/b>(Philadelphia)<\/li>\n<li><b>University of Texas \u2013 Southwestern<\/b> (Dallas)<\/li>\n<li><b>University of Utah Medical Center<\/b> (Salt Lake City)<\/li>\n<li><b>Washington University School of Medicine<\/b> (St. Louis, Mo.)<\/li>\n<li><b>Yale University School of Medicine<\/b> (New Haven, Conn.)<\/li>\n<\/ul>\n<p>To request a screening at UNC\u2019s HHT Center of Excellence, contact Karen Smith, RN, at 919-966-2790.<\/p>\n<p><a class=\"external-link\" href=\"http:\/\/news.unchealthcare.org\/news\/2011\/march\/hht\">http:\/\/news.unchealthcare.org\/news\/2011\/march\/hht<\/a><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Raj Kasthuri, MD, is director of the new center of excellence for the treatment of hereditary hemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, an inherited disorder of the blood vessels that can cause excessive bleeding.<\/p>\n","protected":false},"author":15383,"featured_media":2262,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[],"class_list":["post-2440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","odd"],"acf":[],"featured_image":"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri.jpg","featured_image_medium":"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri.jpg","featured_image_medium_large":"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri.jpg","featured_image_large":"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri.jpg","featured_image_thumbnail":"https:\/\/www.med.unc.edu\/htcenter\/wp-content\/uploads\/sites\/711\/2018\/05\/Kasthuri-150x169.jpg","featured_image_alt":"","category_details":[{"name":"HTC News","link":"https:\/\/www.med.unc.edu\/htcenter\/category\/news\/"}],"tag_details":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/posts\/2440","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/users\/15383"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/comments?post=2440"}],"version-history":[{"count":1,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/posts\/2440\/revisions"}],"predecessor-version":[{"id":5086,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/posts\/2440\/revisions\/5086"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/media\/2262"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/media?parent=2440"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/categories?post=2440"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.med.unc.edu\/htcenter\/wp-json\/wp\/v2\/tags?post=2440"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}