The Cystic Fibrosis Foundation
“At the heart of the Cystic Fibrosis Foundation is our commitment to help people with CF live longer, healthier lives. Our efforts have increased life expectancy for people with the disease by more than 30 years. But that is not enough… we will not rest until we find a cure. Every step of the way, we are here for you.”
-Robert J Beall, PhD, President & CEO, Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure. They fund more CF research than any other organization in the world, and nearly every CF drug available today was made possible because of our support. To ensure that potential treatments can advance swiftly through development so that they are made available to you as soon as possible, they created a CF clinical trials network that is the largest in the world for the study of CF treatments. To learn more about promising drugs in clinical trials visit www.cff.org/clinicaltrials.
To ensure that you receive the right experts on your team no matter where you reside, the CF Foundation supports and accredits a network of more than 110 CF care centers nationwide. At your center, physicians, nurses, social workers, dietitians, respiratory therapists, and other care providers are dedicated to working closely with you to give you the finest care and the latest treatments available. Since cystic fibrosis is a complex disease, whether a family member has just been diagnosed or you have been living with CF, you probably have a lot of questions. At www.cff.org you may find online sources for the latest information about CF treatment, care and research. There, you may find:
- Facts about CF lung health and nutrition
- Tips for staying healthy
- Resources for managing CF at school and in the workplace
- And more
To contact the Foundation directly, call or email at (800) FIGHT-CF; firstname.lastname@example.org.
Medications and treatments for CF can be expensive — and navigating health insurance can be difficult. The CF Services Pharmacy is a full-service pharmacy that saves you time and money by delivering specialty CF medications right to your door. The pharmacy provides:
- One-stop shopping for all your CF prescriptions
- Ability to refill and track the status of an order online or by phone
- Free shipping on orders totaling more than $25
The pharmacy also helps patients obtain the maximum reimbursement from their health insurance and drug plans. Visit www.cfservicespharmacy.com or call (800) 541-4959. In addition, the Cystic Fibrosis Foundation Compass is a personalized service to help you with the insurance, financial, legal and other issues you are facing. Visit https://www.cff.org/Assistance-Services/Insurance/Your-Insurance-Plan/Find-Resources–CF-Foundation-Compass/ or call 844-COMPASS (844-266-7277).
The CF Legal Information Hotline can answer your questions about health insurance coverage and provide information about the laws that protect the rights of people with CF. Email CFLegal@cff.org or call (800) 622-0385.
For more information you may sign up at www.cff.org/email-opt-in/. Then you may receive our e-newsletter, Connections, regular email updates about breaking CF news, and information on ways to get involved. You may also fill this form and mail it to the address below.
Join the CF Foundation on Facebook: www.facebook.com/cysticfibrosisfoundation.
Carolinas Chapter News & Events: https://www.cff.org/Raleigh/
Carolinas Chapter Volunteer Opportunities: https://www.cff.org/Chapters/Raleigh/Get-Involved/
The CF Foundation Carolinas Chapter
2301 Stonehenge Drive, Suite 200
Raleigh, NC 27615
Phone: (919) 845-2155
Fax: (919) 845-2404