Celeste Lee Shares Her Message on the Power of Patient Engagement in New Chair's Corner Episode

Dr. Falk interviews Celeste Lee in this special episode on patient engagement. Celeste is described by Dr. Falk as an "astonishing leader and ferocious advocate for patient engagement," and discusses the process of getting patients to become advocates for their health. She is also joined by her husband Daniel Lee, PhD on a discussion about being a caregiver and including patient engagement in the health system. Celeste's work in patient engagement spans the University of Michigan, the Kidney Health Initiative, and the Patient Centered Outcomes Research Institute (PCORI), and she draws on her own experience as a patient with vasculitis, which she also relates here. Dr. Daniel Lee is a Professor and Chair of Health Policy and Management for the Gillings School of Global Public Health.

Celeste Lee Shares Her Message on the Power of Patient Engagement in New Chair's Corner Episode click to enlarge Photo of Celeste and Daniel Lee, PhD by Rochelle Moser
"The hardest part about any of these illnesses is the isolation and the loneliness. No matter what disease you’re being diagnosed with, I would say that is the largest obstacle.

The only way we can really work with that isolation and loneliness is to partner with our doctors, with our health care team, and more importantly to learn how to manage and know our disease and help others learn how to manage it... That’s what I would tell my 17-year-old self. I’d say: Learn, do as much as you can, talk with your doctors, and do as much as you can to reach out to help other people."

Celeste Lee

Topics include:

  • What is patient engagement, and what it means to Celeste Lee
  • Advice to patients to become advocates for themselves
  • If the patient is the driver how to help physicians know that they are passengers
  • Advice Celeste would have given her 17-year-old self
  • The ups and downs of being a caregiver
  • Educating providers in this engagement approach
  • How to convince patients to want to be peer advisors
  • How to design a health system that includes patient engagement
  • How Celeste's work has helped her in life

Listen to the podcast.