{"id":18088,"date":"2019-01-10T14:38:20","date_gmt":"2019-01-10T19:38:20","guid":{"rendered":"https:\/\/www.med.unc.edu\/medicine\/news\/chairs-corner\/podcasts\/having-an-autoimmune-condition-without-having-a-clear-diagnosis\/"},"modified":"2025-10-23T13:12:23","modified_gmt":"2025-10-23T17:12:23","slug":"autoimmune-unclear-diagnosis","status":"publish","type":"episode","link":"https:\/\/www.med.unc.edu\/medicine\/news\/chairs-corner\/podcast\/autoimmune-unclear-diagnosis\/","title":{"rendered":"Having an Autoimmune Condition&#8230;Without Having a Clear Diagnosis"},"content":{"rendered":"<p>This is Episode Eleven of &#8220;Autoimmune Disease: Pieces of the Picture.&#8221; Dr. Falk interviews a patient who tells her experience of developing autoimmune disease symptoms. This patient describes what it&#8217;s like to deal with symptoms that fit the description of an autoimmune disease process but is unable to receive a clear-cut diagnosis for what is happening. She talks about feelings of doubt and uncertainty as well as handling fatigue and flare ups, and provides listeners with her thoughts on how to cope when this happens.<\/p>\n<div class=\"alert alert-grey\">\n<p>\u201cWhen I started having symptoms, I just made up an explanation in my mind for what was happening instead of thinking that I had a disease. I definitely didn\u2019t think that it would be a long-term condition that I would have to deal with. I think that the fact that the doctors couldn\u2019t tell what was wrong right away, made me doubt my own observations of myself.\u201d<\/p>\n<\/div>\n<!--[if lt IE 9]><script>document.createElement('audio');<\/script><![endif]-->\n\t<div class=\"wp-playlist wp-audio-playlist wp-playlist-light\">\n\t\t\t<div class=\"wp-playlist-current-item\"><\/div>\n\t\t<audio controls=\"controls\" preload=\"none\" width=\"1118\"\n\t\t\t><\/audio>\n\t<div class=\"wp-playlist-next\"><\/div>\n\t<div class=\"wp-playlist-prev\"><\/div>\n\t<noscript>\n\t<ol>\n\t\t<li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/03\/autoimmune-unclear.mp3'>Full-Length Track<\/a><\/li><li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/01\/autoimmune-start.mp3'>An ordinarily healthy person who suddenly develops symptoms<\/a><\/li><li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/01\/autoimmune-doubt.mp3'>An unclear picture & feelings of doubt<\/a><\/li><li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/01\/autoimmune-fatigue.mp3'>Dealing with fatigue & unpredictability<\/a><\/li><li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/01\/autoimmune-web.mp3'>Not being able to name your disease, and information on the web<\/a><\/li><li><a class=\"thumbnail img-thumbnail\" href='https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2019\/01\/autoimmune-message.mp3'>Positive parting thoughts to others who may be in a similar situation<\/a><\/li>\t<\/ol>\n\t<\/noscript>\n\t<script type=\"application\/json\" class=\"wp-playlist-script\">{\"type\":\"audio\",\"tracklist\":true,\"tracknumbers\":true,\"images\":true,\"artists\":true,\"tracks\":[{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/03\\\/autoimmune-unclear.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"Full-Length Track\",\"caption\":\"\",\"description\":\"\\\"Having an Autoimmune Condition...Without Having a Clear Diagnosis\\\" from Autoimmune Disease: Pieces of the Picture by UNC Department of Medicine: Dr. Ron Falk. Released: 2017.\",\"meta\":{\"artist\":\"UNC Department of Medicine: Dr. Ron Falk\",\"album\":\"Autoimmune Disease: Pieces of the Picture\",\"year\":\"2017\",\"length_formatted\":\"21:48\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}},{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/01\\\/autoimmune-start.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"An ordinarily healthy person who suddenly develops symptoms\",\"caption\":\"\",\"description\":\"\\\"autoimmune-start\\\". Released: 2019.\",\"meta\":{\"year\":\"2019\",\"length_formatted\":\"4:09\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}},{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/01\\\/autoimmune-doubt.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"An unclear picture & feelings of doubt\",\"caption\":\"\",\"description\":\"\\\"autoimmune-doubt\\\". Released: 2019.\",\"meta\":{\"year\":\"2019\",\"length_formatted\":\"3:04\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}},{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/01\\\/autoimmune-fatigue.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"Dealing with fatigue & unpredictability\",\"caption\":\"\",\"description\":\"\\\"autoimmune-fatigue\\\". Released: 2019.\",\"meta\":{\"year\":\"2019\",\"length_formatted\":\"6:42\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}},{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/01\\\/autoimmune-web.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"Not being able to name your disease, and information on the web\",\"caption\":\"\",\"description\":\"\\\"autoimmune-web\\\". Released: 2019.\",\"meta\":{\"year\":\"2019\",\"length_formatted\":\"4:45\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}},{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/uploads\\\/sites\\\/945\\\/2019\\\/01\\\/autoimmune-message.mp3\",\"type\":\"audio\\\/mpeg\",\"title\":\"Positive parting thoughts to others who may be in a similar situation\",\"caption\":\"\",\"description\":\"\\\"autoimmune-message\\\". Released: 2019.\",\"meta\":{\"year\":\"2019\",\"length_formatted\":\"1:46\"},\"image\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64},\"thumb\":{\"src\":\"https:\\\/\\\/www.med.unc.edu\\\/medicine\\\/wp-content\\\/plugins\\\/media-library-assistant\\\/images\\\/crystal\\\/audio.png\",\"width\":48,\"height\":64}}]}<\/script>\n<\/div>\n\t\n<div class=\"image-section\">\n<figure class=\"thumbnail wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium\" src=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/autoimmune-unclear-diagnosis-image2.jpeg\" alt=\"image2\" width=\"300\" height=\"200\" \/><figcaption class=\"caption wp-caption-text\"><\/figcaption><\/figure>\n<\/div>\n<p><b>Ron Falk, MD:<\/b> Hello, and welcome to the Chair\u2019s Corner from the Department of Medicine at the University of North Carolina. This is our series that explores topics related to autoimmune disease, to help patients and their loved ones understand and manage their condition.<\/p>\n<p>Today\u2019s episode is different from that which we\u2019ve done before. Today we have a person, Kristen, who has an unnamed autoimmune disease. The reason why we wanted to have Kristen here today is that so many patients have a constellation of what they feel and what physical findings they may have that don\u2019t permit a clear diagnosis. We\u2019ve had discussions about lupus, about autoimmune hepatitis, about rheumatoid arthritis. Those are clear cut and well-described diseases, but there are so many people who have autoimmune conditions without a label. That\u2019s what we want to talk about today. Welcome, Kristen.<\/p>\n<p><b>Kristen: <\/b>Thank you.<\/p>\n<h3><span class=\"blue\">An ordinarily healthy person who suddenly develops symptoms<\/span><\/h3>\n<p><b>Falk:<\/b> Tell me a little bit about you, and what you were able to do prior to your illness.<\/p>\n<p><b>Kristen:<\/b> I am 35 years old and I\u2019m married, I have three children and I live in Durham, North Carolina. Before I got sick, I led a very healthy, very active lifestyle. I was running half marathons and doing a lot of long distance running and I was competing in local races and doing very well for myself.<\/p>\n<p><b>Falk:<\/b> At the same time, you\u2019re a mom, you\u2019re an athlete, you\u2019re employed and have a full time busy job.<\/p>\n<p><b>Kristen:<\/b> Yes.<\/p>\n<p><b>Falk:<\/b> So before this illness occurred, you were an incredibly productive 35-year-old mom.<\/p>\n<p><b>Kristen:<\/b> Yes, and I had zero history of any kind of health problem.<\/p>\n<p><b>Falk:<\/b> When you became ill, the illness came out of the blue, you would have had the typical cold or other kind of community-acquired illnesses of otherwise healthy individuals. What we\u2019re about to describe is really a different constellation of things that were bothering you. What were those? How did it start?<\/p>\n<p><b>Kristen:<\/b> I think I noticed things starting when I couldn\u2019t run like I normally could. It felt painful to run, which was a really new feeling for me.<\/p>\n<p><b>Falk:<\/b> Your joints were bothering you?<\/p>\n<p><b>Kristen:<\/b> No, I was getting out of breath and it just felt really hard to do, and so I basically slowly stopped running. It was more than just in my lungs, my body was tired and I was having pains. I started having more pains even when I wasn\u2019t running&#8211;I developed pains in my chest.<\/p>\n<p><b>Falk:<\/b> So you went to see a physician, and that physician said what?<\/p>\n<p><b>Kristen:<\/b> Between when I made the appointment and when I was seen, my chest pains became a lot worse and she ran some tests.<\/p>\n<p><b>Falk:<\/b> Over the course of time it became clear that some of this pain might have been due to inflammation of the lining around your heart. But that was not diagnosed right away \u2013 people were not clear whether you had inflammation of the lining of the heart or not.<\/p>\n<p><b>Kristen:<\/b> In a very short amount of time, I became very sick. I was having chest pains that escalated to extreme pains and found myself in the emergency room, because I did not know what was going on and the doctor didn\u2019t know what was going on.<\/p>\n<p><b>Falk:<\/b> And you also saw a heart doctor who also did not know what was going on.<\/p>\n<p><strong>Kristen:<\/strong> Yes. When I visited the emergency room, I think that the doctors saw me as a very healthy looking person without the obvious risk factors. I wasn\u2019t overweight, I didn\u2019t have anything wrong with any of my blood work that they could see right away. I think that I was seen as somebody who was maybe anxious.<\/p>\n<h3><span class=\"blue\">An unclear picture &amp; feelings of doubt<\/span><\/h3>\n<p><b>Falk:<\/b> A mom who is coming with unclear chest pain but doesn\u2019t have an obvious diagnosis. In your mind, did you start doubting whether there was anything wrong with you?<\/p>\n<p><b>Kristen:<\/b> Definitely. I didn\u2019t know if I was making this up in my own head or if it was a real thing that I needed to take seriously.<\/p>\n<p><b>Falk:<\/b> And when you would look down at your hands, and your hands would turn white, if not blue, which really is associated with something called Raynaud\u2019s syndrome, what did you think about that obvious difference in your hands?<\/p>\n<p><b>Kristen:<\/b> When I started to have the Raynaud\u2019s, I thought that I was just cold. I think a lot of these things, I just made up an explanation in my mind for what was happening instead of thinking that I had a disease. I definitely didn\u2019t think that it would be a long-term condition that I would have to deal with. I thought, <i>\u201cI\u2019m cold.\u201d<\/i> Or, <i>\u201cI\u2019m stressed out.\u201d<\/i> I didn\u2019t really know, and I think that the fact that the doctors couldn\u2019t tell what was wrong right away, made me doubt my own observations of myself.<\/p>\n<p><b>Falk:<\/b> If one had found on a blood test for example, that you had a disease like lupus, that the blood tests showed you had lupus, then all of a sudden one would have been able to say, <i>\u201cOh, this lady has pericarditis, and she has Raynaud\u2019s, this must be part and parcel of lupus.\u201d<\/i> But without those positive blood tests, and without the certainty that there was pericardial inflammation, physicians had a hard time coming to say to you, <i>\u201cWait a minute, your inability to run, your cold hands, your chest pain, you\u2019re feeling poorly, doesn\u2019t have a diagnosis.\u201d<\/i><\/p>\n<p><b>Kristen:<\/b> I was also feeling some pretty terrible joint pain in my ankles. I think that as I noticed more and more of this happening and was able to report that to the doctor, then they were able to run more tests and the ANA test turned out to be a positive ANA. The ANA seemed to be a clue, but it was made clear to me that it wasn\u2019t something that could be used for a diagnosis.<\/p>\n<p><b>Falk:<\/b> Because so many healthy individuals have a positive anti-nuclear antibody, so it\u2019s not a diagnostic test.<\/p>\n<h3><span class=\"blue\">Dealing with fatigue &amp; unpredictability<\/span><\/h3>\n<p><b>Falk<\/b>: You also were very tired, is that right? So many patients have what I describe as an animal fatigue. When one&#8217;s tired, it\u2019s not just, \u201c<i>Oh, I\u2019m tired and I can press through this.\u201d<\/i> This is fatigue that put you into bed.<b> <\/b><\/p>\n<p><b>Kristen:<\/b> Yes. When this started happening it felt like I had the flu\u2014that\u2019s the kind of fatigue that I was feeling.<\/p>\n<p>Once the chest pains, the pericarditis resolved, after a few months, I think I noticed the fatigue much more. I was definitely experiencing fatigue in the early months of it, but in the last year, I have had fatigue that comes on suddenly and just knocks me off my feet. Basically I can\u2019t do anything for maybe a day or a weekend, and can\u2019t cook, and sometimes can\u2019t go to some of the school functions. I\u2019m not able to just do the ordinary things that I like to do.<\/p>\n<p><b>Falk:<\/b> So what you\u2019re describing, which is typical of an autoimmune disease, is a process that\u2019s coming and going and coming and going, to a certain extent, relapsing and remitting.<\/p>\n<p><b>Kristen:<\/b> Yes, I think when all of this started a year ago, there were a lot of symptoms that I experienced all at once, and then I kind of started feeling better after three or four months. Then there was a period of time where it was unclear if that was just a one-time thing or if it was going to come back. So I think that my doctor and I were waiting to see what would happen next.<\/p>\n<p><b>Falk: <\/b>So eventually you found a physician who was able to listen and able to figure out with you what was going on. That process didn\u2019t happen immediately, it took a while to figure out who was most aligned with you.<\/p>\n<p><b>Kristen:<\/b> I actually didn\u2019t have a regular doctor and trying to find somebody in a short amount of time who I could trust was really challenging. I didn\u2019t necessarily know what I needed. I was so fortunate to find my doctor, who listened to me, and was able to thoughtfully go through this process in a way that was supportive. She didn\u2019t jump to conclusions but she didn\u2019t rule out autoimmune disease or viruses. I felt like she went through the process in a way that I could trust.<\/p>\n<p><b>Falk:<\/b> It took you a while to find somebody and that relationship is really essential to patients with an autoimmune process that\u2019s not clearly labeled. You went to a general internist who you just described who was able to have that relationship. I think many times it takes a while for patients to figure out who to go to find someone and not feel dismissed.<\/p>\n<p><b>Kristen:<\/b> Right.<\/p>\n<p><b>Falk:<\/b> How do you deal with the fact that this process comes and goes and it\u2019s not predictable? How do you deal with that internally, yourself, and how do you have your family understand when these things are happening, and what do you tell your friends?<\/p>\n<p><b>Kristen:<\/b> When this started happening, it was really hard because when I started getting better, my family would think, <i>\u201cOh, I\u2019m so glad you\u2019re feeling better now!\u201d<\/i><\/p>\n<p><b>Falk:<\/b> Back to normal mom! And hey mom, can you do the laundry?<\/p>\n<p><b>Kristen:<\/b> Right, and I knew that I couldn\u2019t count on me being back to normal. Over time my husband and my family could see that I\u2019ve had flare ups of symptoms. Sometimes I have a rough week and sometimes I have a good week, or it could just be a bad day.<\/p>\n<p><b>Falk:<\/b> How do you separate out a bad day if it\u2019s just a bad day in contrast to this is a bad day walking in?<\/p>\n<p><b>Kristen:<\/b> For me, I can usually tell when I wake up how tired I\u2019m going to be. Then I can tell that I need to take it easy.<\/p>\n<p><b>Falk:<\/b> So you\u2019ve learned is how to listen to your body. But that took a while to get to that spot. So one of the take-home lessons is really not doubt yourself and feel comfortable being able to say, I\u2019m not able to produce today and those around me need to take care of me.<\/p>\n<p><b>Kristen:<\/b> My husband is really helpful with that. He notices when I\u2019m trying to do too much and points out when it\u2019s more than I can handle realistically.<\/p>\n<p>It is hard to try to explain to people who don\u2019t understand what\u2019s going on, and to feel like what I\u2019m going through is valid. Some of my friends might not get what\u2019s happening. But not being able to say <em>\u201cI have this specific condition,\u201d<\/em> is hard.<\/p>\n<h3><span class=\"blue\">Not being able to name your disease, and information on the web<\/span><\/h3>\n<p><b>Falk:<\/b> It\u2019s hard\u2014if you say &#8220;I have lupus&#8221; or &#8220;I have rheumatoid arthritis,&#8221; then one can Google rheumatoid arthritis. What happens if you Google the word autoimmune disease? What comes up?<\/p>\n<p><b>Kristen:<\/b> Well, if you Google autoimmune disease, you actually could pull up a lot of information from wellness web sites that are talking about certain diet that you ought to follow if you have an autoimmune disease process. That\u2019s some of the top content that I\u2019ve pulled up online.<\/p>\n<p><b>Falk:<\/b> Did you try those diets?<\/p>\n<p><b>Kristen:<\/b> Not really, no. In the back of my mind, maybe I think I should. But to go through something like that for a long time without knowing if it would really help, would be miserable for me.<\/p>\n<p><b>Falk:<\/b> They\u2019re advertised content. These diets have not been proven effective, but if a patient figures out that there is something that they\u2019re eating that makes them not feel well, that\u2019s probably the best sign that the diet will help. There are antigen elimination diets where there are foods where for that particular individual make that individual feel poorly. Believe it or not my spouse doesn\u2019t like chocolate, chocolate makes her feel terrible. There are real individual foods that make people feel poorly. But to be put on a diet for autoimmunity is not really what you were looking for\u2014you were looking for,<i>\u201dHow do I deal with what\u2019s going on with me?\u201d<\/i><\/p>\n<p><b>Kristen:<\/b> Yes, and truthfully I\u2019ve probably done a lot of searching online of information about autoimmune disease and how to deal with it that really couldn\u2019t be answered by the Internet or even really by a doctor\u2014things I\u2019ve had to learn on my own.<\/p>\n<p><b>Falk:<\/b> Such as? Give us some examples.<\/p>\n<p><b>Kristen:<\/b> Okay. It\u2019s only been a year since I\u2019ve been dealing with this, and it\u2019s been helpful for me to realize that I shouldn\u2019t put so much thought into, <i>How am I going to be feeling tomorrow?<\/i> Or <i>What\u2019s my health going to be in a month? What\u2019s my health going to be like a year from now?<\/i> Trying to predict or trying to plan what my health is going to be like.<\/p>\n<p><b>Falk:<\/b> It\u2019s a beautiful, sunny day today, you better enjoy that day.<\/p>\n<p><b>Kristen:<\/b> Exactly.<\/p>\n<p><b>Falk:<\/b> It really does cause one to enjoy when one feels well and make the most out of that time, because you can\u2019t predict what tomorrow is going to bring.<\/p>\n<p>How do you deal with friends or sometimes even strangers, who know a little bit about you, and they launch into a series of home remedies of one kind or another?<\/p>\n<p><b>Kristen:<\/b> I think that some people just want to help and they don\u2019t know how. Some people have an idea of what might be going on with me. Hearing suggestions about diet or lifestyle changes can be hard to hear. So what I\u2019ve learned is for me not to do that myself to other people, and I may have been guilty of that in the past. Someone who\u2019s sick, and I would suggest, <i>\u201cMaybe you should take zinc\u201d<\/i> just different suggestions, trying to help.<\/p>\n<p><b>Falk:<\/b> People want to help but they don\u2019t know how. Sometimes just being there is the best remedy.<\/p>\n<p><b>Kristen:<\/b> Yes, and I think that the people who are closest to me are the ones who have been able to understand and be there for me and help me through this.<\/p>\n<h3><span class=\"blue\">Positive parting thoughts to others who may be in a similar situation<\/span><\/h3>\n<p><b>Falk:<\/b> And right now you\u2019re doing incredibly well and getting back to health. This concept of restoration of health\u2014you\u2019re trying to get back to where you were, and there are times when your health is restored and there are times when it\u2019s not, just being there through the ups and downs is critical.<\/p>\n<p>What take home messages do you want to leave folks with?<\/p>\n<p><b>Kristen:<\/b> Well, I think I would say to be patient and trust yourself. You may not have an answer when you want it. You may want to know what\u2019s going on that day or that week and you may not have an answer for a really long time about what\u2019s going, so just being patient in that process. Find a physician you can trust who is willing to listen to you and take you seriously. And surround yourself with people in your life who care about you and show you love. The last thing I would say is finding meaningful work or doing something meaningful in your day that has nothing to do with yourself, has nothing to do with your disease, some way that you can help someone else that day, can be really helpful.<\/p>\n<p><b>Falk:<\/b> Wonderful messages for all of us. Kristen, thanks so much for being here, being so open and spending time here today.<\/p>\n<p><b>Kristen:<\/b> Thank you.<\/p>\n<div class=\"alert alert-gray\">\n<p>Next week&#8217;s episode will be the final episode in this series and will focus on coping strategies for people who have an autoimmune disease. Our featured speaker will be <a class=\"external-link\" title=\"\" href=\"https:\/\/pharmacy.unc.edu\/news\/directory\/dlmiller\" target=\"_blank\" rel=\"noopener\">Delesha Carpenter, PhD, MSPH<\/a>.<\/p>\n<p>Have you enjoyed these podcasts? Do you like hearing from the patient&#8217;s perspective? Please drop us a line on <a href=\"https:\/\/itunes.apple.com\/us\/podcast\/unc-department-of-medicine-chairs-corner\/id1076686662?mt=2\">iTunes reviews<\/a> or on <a href=\"http:\/\/www.facebook.com\/UNCDeptMedicine\">FaceBook<\/a> and let us know. Thank you!<\/p>\n<\/div>\n<p>\/\/<\/p>\n","protected":false},"excerpt":{"rendered":"<p><!-- description --> <\/p>\n<p class='lead'>This is Episode Eleven of &#8220;Autoimmune Disease: Pieces of the Picture.&#8221; Dr. Falk interviews a patient who tells her experience of developing autoimmune disease symptoms. This patient describes what it&#8217;s like to deal with symptoms that fit the description of an autoimmune disease process but is unable to receive a clear-cut diagnosis for what is happening. She talks about feelings of doubt and uncertainty as well as handling fatigue and flare ups, and provides listeners with her thoughts on how to cope when this happens.<\/p>\n","protected":false},"featured_media":4115,"menu_order":0,"template":"","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","_links_to":"","_links_to_target":""},"podcast-category":[634,692,664,639],"class_list":["post-18088","episode","type-episode","status-publish","has-post-thumbnail","hentry","podcast-category-podcast-autoimmune-disease-series","podcast-category-kidney-autoimmune-podcasts","podcast-category-podcast-patient-stories","podcast-category-podcast","odd"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Having an Autoimmune Condition...Without Having a Clear Diagnosis | Department of Medicine<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/medicine\/news\/chairs-corner\/podcast\/autoimmune-unclear-diagnosis\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Having an Autoimmune Condition...Without Having a Clear Diagnosis | Department of Medicine\" \/>\n<meta property=\"og:description\" content=\"This is Episode Eleven of &quot;Autoimmune Disease: Pieces of the Picture.&quot; Dr. Falk interviews a patient who tells her experience of developing autoimmune disease symptoms. 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