{"id":4437,"date":"2017-11-27T16:25:00","date_gmt":"2017-11-27T21:25:00","guid":{"rendered":"https:\/\/www.med.unc.edu\/medicine\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic\/"},"modified":"2023-06-06T17:21:38","modified_gmt":"2023-06-06T21:21:38","slug":"pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic","status":"publish","type":"post","link":"https:\/\/www.med.unc.edu\/medicine\/news\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic\/","title":{"rendered":"Pediatric Kidney Trial Combines a Simple Diet with Moments of Magic"},"content":{"rendered":"<p><em>Disney is a place to make wishes and memories, not necessarily the place to go on a diet. But what if it could change a child\u2019s life? That\u2019s what researchers are hoping to learn. Two-year-old Nadiya Dockery with nephrotic syndrome was one of 20 children who participated in a grand medical experiment at Disney Resorts in August, joined by her mom Kaley Williams of Sanford, NC.<\/em><\/p>\n<p>One year ago, Kaley noticed Nadiya had swelling in her face and stomach. \u201cShe couldn\u2019t bend over to play and she struggled to crawl in and out of bed,\u201d said Kaley. \u201cShe wasn\u2019t urinating as much as usual.\u201d<\/p>\n<figure id=\"attachment_4438\" class=\"thumbnail wp-caption alignright\" style=\"width: 310px\"><a href=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2.png\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-4438\" src=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-300x178.png\" alt=\"nadiya-dockery\" width=\"300\" height=\"178\" srcset=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-300x178.png 300w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-1024x607.png 1024w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-768x455.png 768w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-600x356.png 600w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2-301x179.png 301w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2.png 1440w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption class=\"caption wp-caption-text\">Two-year-old Nadiya Dockery from Sanford participated in the Genie Trials at Disney World.<\/figcaption><\/figure>\n<p>Nadiya\u2019s primary care physician referred her to <a class=\"external-link\" title=\"unc_kidney_center\" href=\"http:\/\/unckidneycenter.org\/\" target=\"_blank\" rel=\"noopener\">UNC\u2019s Kidney Center<\/a> for studies. A kidney biopsy confirmed <a class=\"external-link\" title=\"minimal_change_disease\" href=\"http:\/\/unckidneycenter.org\/kidneyhealthlibrary\/glomerular-disease\/minimal-change-disease\" target=\"_blank\" rel=\"noopener\">Minimal Change Disease<\/a>, a condition in which large amounts of protein are lost in the urine. Conventional treatments typically rely on steroids, but in some cases, Minimal Change Disease can be unresponsive and may require additional immunosuppressant medications. These patients face bothersome symptoms, and with time, the prospect of kidney failure.<\/p>\n<figure id=\"attachment_4441\" class=\"thumbnail wp-caption alignleft\" style=\"width: 310px\"><a href=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-4441\" src=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-300x194.jpeg\" alt=\"nadiya-dockery-getting-blood-pressure-during-genie-trial\" width=\"300\" height=\"194\" srcset=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-300x194.jpeg 300w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-1024x662.jpeg 1024w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-768x496.jpeg 768w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-1536x992.jpeg 1536w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-600x388.jpeg 600w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial-301x194.jpeg 301w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/nadiya-dockery-getting-blood-pressure-during-genie-trial.jpeg 1568w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption class=\"caption wp-caption-text\">Nadiya&#8217;s blood pressure and other vitals were monitored during the Genie Trial.<\/figcaption><\/figure>\n<p>UNC pediatric nephrologists <a class=\"external-link\" title=\"keisha_gibson\" href=\"http:\/\/unckidneycenter.org\/about\/directory\/keisha-gibson\" target=\"_blank\" rel=\"noopener\">Dr. Keisha Gibson<\/a> and <a class=\"external-link\" title=\"dorey_glenn\" href=\"https:\/\/unckidneycenter.org\/about\/directory\/dorey-glenn\" target=\"_blank\" rel=\"noopener\">Dr. Dorey Glenn <\/a>suggested Nadiya and her parents consider participating in a research observation study called the <a class=\"external-link\" title=\"genie_trial\" href=\"http:\/\/thegeniestudy.com\" target=\"_blank\" rel=\"noopener\">Genie Trial<\/a>. It would control Nadiya\u2019s diet for observation, in an environment where protocols could be followed. In August, Kaley and Nadiya packed for Orlando, Florida, to vacation in a luxurious house with a hot tub and pool.<\/p>\n<p>The trial&#8211;anonymously funded by a Brazilian family, whose own daughter had nephrotic syndrome which had gone into remission after a new diet&#8211;focused on strictly organic food, without salt or processed sugar, low in sodium and gluten and dairy free. Meals were prepared by professional chefs, with simple and wholesome ingredients. A typical breakfast consisted of eggs, pancakes or gluten free cereal. For lunch, there was rice and beans, soup and salad, usually with grass-fed beef or chicken, and sometimes tofu. And after each meal, there was fun to be had.<\/p>\n<p>\u201cWe took trips to Disney and the water park,\u201d said Kaley. \u201cNadiya really liked playing in the water.\u201d<\/p>\n<p>&nbsp;<\/p>\n<figure id=\"attachment_4439\" class=\"thumbnail wp-caption alignleft\" style=\"width: 310px\"><a href=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-4439\" src=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-300x191.jpeg\" alt=\"Nadiya Dockery with her parents Eric Dockery and Kaley Williams, with UNC Pediatric Nephrologist Dr. Dorey Glenn\" width=\"300\" height=\"191\" srcset=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-300x191.jpeg 300w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-1024x653.jpeg 1024w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-768x490.jpeg 768w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-1536x980.jpeg 1536w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-2048x1307.jpeg 2048w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-600x383.jpeg 600w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image3-301x192.jpeg 301w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption class=\"caption wp-caption-text\">Nadiya Dockery with her parents Eric Dockery and Kaley Williams, with UNC Pediatric Nephrologist Dr. Dorey Glenn<\/figcaption><\/figure>\n<p>In the evenings, they watched movies from their in-home theater. They enjoyed a private performance from former Ringling Bros. acrobats. \u201cOften times, after dinner, the chefs would make an avocado pudding,&#8221; said Kaley. &#8220;Nadiya liked a frozen fruit snack in coconut water.\u201d<\/p>\n<p>In September, Dr. Glenn met a bright-eyed Nadiya at UNC Medical Center. She wore a Minnie Mouse shirt and her disease was under excellent control. Kaley says spending time with parents of children with nephrotic syndrome was a valuable experience. She also learned a lot of new recipes.<\/p>\n<p><a href=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat.png\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-medium wp-image-4440\" src=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-202x300.png\" alt=\"acrobat-nadiya-dockery\" width=\"202\" height=\"300\" srcset=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-202x300.png 202w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-691x1024.png 691w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-768x1138.png 768w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-1036x1536.png 1036w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-600x889.png 600w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat-301x446.png 301w, https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/Acrobat.png 1163w\" sizes=\"auto, (max-width: 202px) 100vw, 202px\" \/><\/a><\/p>\n<p>\u201cIt was enlightening for me to meet other parents who share the same struggles. We exchanged phone numbers and most of us are friends on Facebook and WhatsApp.\u201d<\/p>\n<p>UNC pediatric nephrologists continue to participate in a number of national observational studies for patients with nephrotic syndrome. \u201cThe medical needs of children are very different from adults,\u201d said Dr. Glenn. \u201cChildren are still growing and they express themselves differently compared to adults. Some children are born with nephrotic syndrome and some develop it a young age. We\u2019re dedicated to advancing new treatments that will enable our young patients to enjoy a healthy childhood.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p><!-- description --> <\/p>\n<p class='lead'>Disney is a place to make wishes and memories, not necessarily the place to go on a diet. But what if it could change a child\u2019s life? That\u2019s what researchers are hoping to learn. Two-year-old Nadiya Dockery with nephrotic syndrome was one of 20 children who participated in a grand medical experiment at Disney Resorts in August, joined by her mom Kaley Williams of Sanford, NC.<\/p>\n","protected":false},"author":69419,"featured_media":4438,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[101,2],"tags":[67],"class_list":["post-4437","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nephrology","category-news","tag-67","odd"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pediatric Kidney Trial Combines a Simple Diet with Moments of Magic | Department of Medicine<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/medicine\/news\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pediatric Kidney Trial Combines a Simple Diet with Moments of Magic | Department of Medicine\" \/>\n<meta property=\"og:description\" content=\"Disney is a place to make wishes and memories, not necessarily the place to go on a diet. But what if it could change a child\u2019s life? That\u2019s what researchers are hoping to learn. Two-year-old Nadiya Dockery with nephrotic syndrome was one of 20 children who participated in a grand medical experiment at Disney Resorts in August, joined by her mom Kaley Williams of Sanford, NC.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.med.unc.edu\/medicine\/news\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic\/\" \/>\n<meta property=\"og:site_name\" content=\"Department of Medicine\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/UNCDeptMedicine\" \/>\n<meta property=\"article:published_time\" content=\"2017-11-27T21:25:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-06-06T21:21:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.med.unc.edu\/medicine\/wp-content\/uploads\/sites\/945\/2018\/12\/pediatric-kidney-trial-combines-a-simple-diet-with-moments-of-magic-image2.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1440\" \/>\n\t<meta property=\"og:image:height\" 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