Neurofibromatosis & Neurocutaneous Disorders
The University of North Carolina Neurofibromatosis Clinic provides multidisciplinary care for children and adults with neurofibromatosis type I (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. The clinic is located at UNC Hospitals in Chapel Hill and provides services to individuals throughout North Carolina and surrounding states.
UNC Health has a long history of research, care and treatment of neurofibromatosis patients. The UNC Neurofibromatosis Clinic opened nearly 50 years ago, and UNC researchers were the first to develop genetic testing for NF1.
Additional neurocutaneous disorders are also evaluated and treated in the clinic, including tuberous sclerosis, Sturge-Weber, ataxia telangectasia, incontinentia pigmentae, linear sebaceous nevus syndrome and others.
As clinic co-directors, Dr. Robert S. Greenwood and Dr. Timothy Gershon oversee a multidisciplinary team of experts who specialize in the diagnosis and management of neurofibromatosis. Our specialists include neurologists, geneticists and genetic counselors, a neuropsychologist, general oncologists, neuro-oncologists, orthopedic oncologists, neuro-otologists, neuro-ophthalmologists, and neurosurgeons with expertise in managing brain and spinal tumors. The clinic’s care providers take a personalized, family-centered approach to your child’s treatment, often seeing families with more than one affected member.
UNC’s state-of-the-art imaging facility includes the only MRI/PET machine in North Carolina. A single imaging study can identify tumors throughout the body, allowing for the monitoring of tumor growth or detection of malignant tumors. The clinic provides treatment for many different types of NF tumors and participates in studies of new drugs to treat tumors caused by neurofibromatosis.
In recognition of the UNC Neurofibromatosis Clinic’s quality of care, expertise and research, the Children’s Tumor Foundation has designated the clinic as a member of their nationwide network of clinics. The NF Clinic Network includes clinics that provide comprehensive medical care, foster patient education and encourage clinical research trials to provide new ways to care for patients with neurofibromatosis. The UNC NF Clinic enthusiastically supports the vision of the Children’s Tumor Foundation to end neurofibromatosis.
Ask your doctor to fax a referral form to (984) 974-5437 or submit a child neurology referral through UNC CareLink. Call (984) 974-7337 if you have any questions.