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Carolina Drive to Cure Sanfilippo Golf Tournament
May 10 @ 8:00 am - 5:00 pm
Sanfilippo Syndrome is a progressive and fatal genetic disorder affecting 1 in 70,000 children. Sanfilippo is often referred to as Childhood Alzheimer’s, there are NO available treatments or a cure. Children with this disorder usually pass away in their early teens, yet it is preceded by many years of severe disability. All proceeds from this event go towards Dr. Haiyan Fu’s research to find a cure for Sanfilippo.