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DTSTART;TZID=America/New_York:20240510T120000
DTEND;TZID=America/New_York:20240510T131500
DTSTAMP:20260404T115724
CREATED:20240429T175009Z
LAST-MODIFIED:20240429T175051Z
UID:10006008-1715342400-1715346900@www.med.unc.edu
SUMMARY:Unlocking Equity: Disability Inclusion in Precision Medicine Research
DESCRIPTION:Carolina Seminar Series theme: Science meets society at the intersection between precision medicine and justice\, equity\, and inclusion\nSeminar title: Unlocking Equity: Disability Inclusion in Precision Medicine Research\nVirtual Event \nFriday May 10th\, 2024\, 12:00pm-1:15pm \nRegister here \nEvent Details:\nFeatured Speakers: Megan Morris\, PhD\, MPH\n                                       Associate Professor\, University of Colorado\, Anschutz\n                                       Founder/ Director\, Disability Equity Collaborative \n                                   Kara Ayers\, PhD\n                                       Associate Director\, University of Cincinnati University Center for Excellence in Developmental Disabilities \n                                       (UC UCEDD) \nDespite comprising about 27% of the US population\, the disability community has remained largely absent from diversity\, equity and inclusion (DEI) efforts in precision medicine and genomics research. Research suggests that individuals with disabilities are willing to participate in precision medicine research\, yet this group continues to be underrepresented. Reasons for this absence range from inaccessible research protocols (i.e. overly narrow inclusion and exclusion criteria) to the perception that it is too burdensome to recruit or accommodate disabled participants. Research can also be subject to ableism\, which discourages marginalized communities from potential research partnerships. If not designed and communicated in ways that respect the complexity and diversity of human genetic variation\, identities\, and experiences\, research risks reifying prejudices that marginalize those it hopes to benefit. This seminar will explore insights into various aspects of disability inclusion within precision medicine and genomics research with a lens on equity\, accessibility\, participation\, and justice.
URL:https://www.med.unc.edu/ppmh/event/unlocking-equity-disability-inclusion-in-precision-medicine-research/
LOCATION:NC
CATEGORIES:Carolina Seminars,events
ATTACH;FMTTYPE=image/jpeg:https://www.med.unc.edu/ppmh/wp-content/uploads/sites/1356/2024/04/CarolinaSeminars_5.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T110000
DTEND;TZID=America/New_York:20240522T123000
DTSTAMP:20260404T115725
CREATED:20240520T174225Z
LAST-MODIFIED:20240520T174225Z
UID:10006009-1716375600-1716381000@www.med.unc.edu
SUMMARY:Working Towards Justice and Genetic Health Literacy in Clinical Genomics
DESCRIPTION:Carolina Seminar Series theme: Science meets society at the intersection between precision medicine and justice\, equity\, and inclusion\nSeminar title: Working Towards Justice and Genetic Health Literacy in Clinical Genomics\nVirtual Event \nWednesday May 22nd\, 2024\, 11:00am-12:30pm \nRegister here \nEvent Details:\nFeatured Speakers: Dr. Janeth Sanchez\, PhD\, MPH\n                                       Program Director for Health Equity at National Institutes of Health \n                                   Dr. Janina Jeff\, PhD\, MS\n                                       Bioinformatics Scientist at Illumina\n                                       Host of In Those Genes Podcast \nJoin us for a seminar and panel about working towards justice & genetic health literacy in clinical genomics and the complexity of supporting informed decision making by members of vulnerable or marginalized groups.
URL:https://www.med.unc.edu/ppmh/event/working-towards-justice-and-genetic-health-literacy-in-clinical-genomics/
LOCATION:NC
CATEGORIES:Carolina Seminars,events
ATTACH;FMTTYPE=image/jpeg:https://www.med.unc.edu/ppmh/wp-content/uploads/sites/1356/2024/05/CarolinaSeminars6.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240905T113000
DTEND;TZID=America/New_York:20240905T130000
DTSTAMP:20260404T115725
CREATED:20240816T181541Z
LAST-MODIFIED:20240917T133439Z
UID:10006010-1725535800-1725541200@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (Workshop #1 of 3)
DESCRIPTION:All Of Us is an NIH-supported research program that brings together academic institutions\, healthcare organizations\, and community partners to gain deeper insights into human health via data science. With an emphasis on representing diverse US populations\, AllOfUs provides access to clinical\, genetic\, wearables\, and personal survey data for over 250K patients in a secure\, cloud-hosted analytics environment known as the Researcher Workbench. By collecting such comprehensive health information into a single platform\, the program seeks to improve medical research and advance personalized medicine for all.   \nThe Raffield Lab\, TISLab\, and UNC Program for Precision Medicine in Health Care (PPMH) present a workshop series in fall 2024 to introduce researchers\, clinicians\, faculty\, staff\, and students at UNC to both the Researcher Workbench and All Of Us data. Join us to get acquainted this powerful resource and connect with colleagues with similar interests.  \n  \nWorkshop 1 – Thursday September 5\, 2024\, 11:30am-1:00pm; lunch provided. In-person. \n\n\nWhat is All of Us \n\n\nWhat data is available \n\n\nControlled vs. Registered tier \n\n\nData types & workspaces for each data type \n\n\n\n\nExample projects at UNC using All of Us data  \n\n\nDeveloping project ideas (hands-on) \n\n\nFinancing your All of Us research \n\n\nRecommended All of Us training to complete on your own before next workshop   \n\n\nWorkshop 2 – Thursday October 3\, 2024\, 12:00-3:00pm; lunch provided. In-person. \n\n\nHow to navigate data interfaces\, what kinds of questions can be asked\, limitations of data   \n\n\nCohort building  \n\n\nEHR language (SNOMED etc.)  \n\n\nCleaning data  \n\n\nProject presentations from researchers at UNC   \n\n\nEstablishing interest in working groups with other researchers at UNC  \n\n\nResources available \n\n\nWorkshop 3 – Thursday October 17\, 2024\, 11:00am-12:00pm. Virtual.\n\n\n\nWorking groups  \n\n\nOffice hours for project assistance  \n\n\nClick here to register for workshop 1 \nQuestions? Email sabrina_powell@med.unc.edu.  
URL:https://www.med.unc.edu/ppmh/event/research-at-unc-with-all-of-us-data-getting-started-workshop-1/
LOCATION:NC
CATEGORIES:events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241003T120000
DTEND;TZID=America/New_York:20241003T150000
DTSTAMP:20260404T115725
CREATED:20240917T133317Z
LAST-MODIFIED:20241020T145008Z
UID:10006011-1727956800-1727967600@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (Workshop #2 of 3)
DESCRIPTION:All Of Us is an NIH-supported research program that brings together academic institutions\, healthcare organizations\, and community partners to gain deeper insights into human health via data science. With an emphasis on representing diverse US populations\, AllOfUs provides access to clinical\, genetic\, wearables\, and personal survey data for over 250K patients in a secure\, cloud-hosted analytics environment known as the Researcher Workbench. By collecting such comprehensive health information into a single platform\, the program seeks to improve medical research and advance personalized medicine for all.   \nThe Raffield Lab\, TISLab\, and UNC Program for Precision Medicine in Health Care (PPMH) present a workshop series in fall 2024 to introduce researchers\, clinicians\, faculty\, staff\, and students at UNC to both the Researcher Workbench and All Of Us data. Join us to get acquainted this powerful resource and connect with colleagues with similar interests.  \n  \nWorkshop 1 – Thursday September 5\, 2024\, 11:30am-1:00pm; lunch provided. In-person. \n\n\nWhat is All of Us \n\n\nWhat data is available \n\n\nControlled vs. Registered tier \n\n\nData types & workspaces for each data type \n\n\n\n\nExample projects at UNC using All of Us data  \n\n\nDeveloping project ideas (hands-on) \n\n\nFinancing your All of Us research \n\n\nRecommended All of Us training to complete on your own before next workshop   \n\n\nWorkshop 2 – Thursday October 3\, 2024\, 12:00-3:00pm; lunch provided. In-person. \n\n\nHow to navigate data interfaces\, what kinds of questions can be asked\, limitations of data   \n\n\nCohort building  \n\n\nEHR language (SNOMED etc.)  \n\n\nCleaning data  \n\n\nProject presentations from researchers at UNC   \n\n\nEstablishing interest in working groups with other researchers at UNC  \n\n\nResources available \n\n\nWorkshop 3 – Thursday October 17\, 2024\, 11:00am-12:00pm. Virtual.\n\n\n\nWorking groups  \n\n\nOffice hours for project assistance  \n\n\n  \nQuestions? Email sabrina_powell@med.unc.edu.  
URL:https://www.med.unc.edu/ppmh/event/research-at-unc-with-all-of-us-data-getting-started-workshop-2-of-3/
LOCATION:NC
CATEGORIES:events,Past events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241017T110000
DTEND;TZID=America/New_York:20241017T120000
DTSTAMP:20260404T115725
CREATED:20241020T144914Z
LAST-MODIFIED:20241020T145041Z
UID:10006012-1729162800-1729166400@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (Workshop #3 of 3)
DESCRIPTION:All Of Us is an NIH-supported research program that brings together academic institutions\, healthcare organizations\, and community partners to gain deeper insights into human health via data science. With an emphasis on representing diverse US populations\, AllOfUs provides access to clinical\, genetic\, wearables\, and personal survey data for over 250K patients in a secure\, cloud-hosted analytics environment known as the Researcher Workbench. By collecting such comprehensive health information into a single platform\, the program seeks to improve medical research and advance personalized medicine for all.   \nThe Raffield Lab\, TISLab\, and UNC Program for Precision Medicine in Health Care (PPMH) present a workshop series in fall 2024 to introduce researchers\, clinicians\, faculty\, staff\, and students at UNC to both the Researcher Workbench and All Of Us data. Join us to get acquainted this powerful resource and connect with colleagues with similar interests.  \n  \nWorkshop 1 – Thursday September 5\, 2024\, 11:30am-1:00pm; lunch provided. In-person. \n\n\nWhat is All of Us \n\n\nWhat data is available \n\n\nControlled vs. Registered tier \n\n\nData types & workspaces for each data type \n\n\n\n\nExample projects at UNC using All of Us data  \n\n\nDeveloping project ideas (hands-on) \n\n\nFinancing your All of Us research \n\n\nRecommended All of Us training to complete on your own before next workshop   \n\n\nWorkshop 2 – Thursday October 3\, 2024\, 12:00-3:00pm; lunch provided. In-person. \n\n\nHow to navigate data interfaces\, what kinds of questions can be asked\, limitations of data   \n\n\nCohort building  \n\n\nEHR language (SNOMED etc.)  \n\n\nCleaning data  \n\n\nProject presentations from researchers at UNC   \n\n\nEstablishing interest in working groups with other researchers at UNC  \n\n\nResources available \n\n\nWorkshop 3 – Thursday October 17\, 2024\, 11:00am-12:00pm. Virtual.\n\n\n\nWorking groups  \n\n\nOffice hours for project assistance  \n\n\n  \nQuestions? Email sabrina_powell@med.unc.edu.  
URL:https://www.med.unc.edu/ppmh/event/research-at-unc-with-all-of-us-data-getting-started-workshop-3-of-3/
LOCATION:NC
CATEGORIES:events,Past events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T140000
DTEND;TZID=America/New_York:20250228T170000
DTSTAMP:20260404T115725
CREATED:20250128T220056Z
LAST-MODIFIED:20250128T220056Z
UID:10006013-1740751200-1740762000@www.med.unc.edu
SUMMARY:Symposium - Beyond the Horizon: The Changing Landscape of Rare Disease Treatments
DESCRIPTION:
URL:https://www.med.unc.edu/ppmh/initiatives/education/symposium-beyond-the-horizon-the-changing-landscape-of-rare-disease-treatments/
LOCATION:MacNider Hall 321\, 333 S Columbia St\, Chapel Hill\, NC\, 27599\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250417T123000
DTEND;TZID=America/New_York:20250417T140000
DTSTAMP:20260404T115725
CREATED:20250306T145325Z
LAST-MODIFIED:20250306T150831Z
UID:10006015-1744893000-1744898400@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (workshop 1 of 3)
DESCRIPTION:
URL:https://www.med.unc.edu/ppmh/initiatives/education/research-at-unc-with-all-of-us-data-getting-started/
LOCATION:Mary Ellen Jones 3116\, 116 Manning Dr\, Chapel Hill\, NC\, 27599\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T100000
DTEND;TZID=America/New_York:20250426T160000
DTSTAMP:20260404T115725
CREATED:20250207T142656Z
LAST-MODIFIED:20250313T183234Z
UID:10006014-1745661600-1745683200@www.med.unc.edu
SUMMARY:Genetics-in-a-Day 2025: Careers from the Bench to the Bedside
DESCRIPTION:Registration now open! \nSaturday April 26\, 2025\, 10:00am-4:00pm \nLocation: Mary Townes Science Building\, NCCU campus\, Durham NC \nLunch provided with registration. \nThe UNC Program for Precision Medicine in Health Care’s PARADIGM initiative and the North Carolina Central University Biological & Biomedical Sciences Department present a 1-day career workshop for undergraduate students.  The goals of the workshop are to 1) introduce NCCU undergraduates and local community college students to applications of genetics & genomics; 2) increase students’ awareness about potential careers in the field; and 3) highlight opportunities for internships and further training at area institutions.  The workshop will consist of concurrent breakout sessions featuring applications of genomics\, a poster session\, panel discussion\, and during lunch students will have the opportunity to chat with career professionals in several related fields.  \n  \nMore information about speakers and agenda will be coming soon. \nClick here to register.\nQuestions? Email precisionmedicine@med.unc.edu \n 
URL:https://www.med.unc.edu/ppmh/event/genetics-in-a-day-2025-careers-from-the-bench-to-the-bedside-2/
LOCATION:Mary Townes Science Building\, NCCU campus\, 1900 Concord St\, Durham\, NC\, 27707\, United States
CATEGORIES:events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250508T123000
DTEND;TZID=America/New_York:20250508T143000
DTSTAMP:20260404T115725
CREATED:20250306T145524Z
LAST-MODIFIED:20250306T150818Z
UID:10006017-1746707400-1746714600@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (workshop 2 of 3)
DESCRIPTION: 
URL:https://www.med.unc.edu/ppmh/initiatives/education/research-at-unc-with-all-of-us-data-getting-started/
LOCATION:Mary Ellen Jones 3116\, 116 Manning Dr\, Chapel Hill\, NC\, 27599\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250529T123000
DTEND;TZID=America/New_York:20250529T133000
DTSTAMP:20260404T115725
CREATED:20250306T150806Z
LAST-MODIFIED:20250306T151742Z
UID:10006021-1748521800-1748525400@www.med.unc.edu
SUMMARY:Research at UNC with All of Us Data – Getting Started (workshop 3 of 3)
DESCRIPTION:
URL:https://www.med.unc.edu/ppmh/initiatives/education/research-at-unc-with-all-of-us-data-getting-started/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260227T140000
DTEND;TZID=America/New_York:20260227T170000
DTSTAMP:20260404T115725
CREATED:20260115T185605Z
LAST-MODIFIED:20260115T185605Z
UID:10006022-1772200800-1772211600@www.med.unc.edu
SUMMARY:Symposium - Beyond the Horizon: Charting the Next Era of Rare Disease Progress at UNC
DESCRIPTION:
URL:https://www.med.unc.edu/ppmh/initiatives/education/symposium-beyond-the-horizon/
LOCATION:NC
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T090000
DTEND;TZID=America/New_York:20260418T140000
DTSTAMP:20260404T115725
CREATED:20260306T195251Z
LAST-MODIFIED:20260309T142630Z
UID:10006023-1776502800-1776520800@www.med.unc.edu
SUMMARY:Genetics-in-a-Day 2026: Careers from the Bench to the Bedside
DESCRIPTION:  \nWhen: Saturday April 18\, 2026\, 9:00am-2:00pm \nWhere: Mary Townes Science Building\, NCCU campus\, Durham NC \nCost: free \nLunch provided with registration for students who register by 5:00pm Friday April 10\, 2026. \nJoin speakers from University of North Carolina at Chapel Hill\, North Carolina Central University\, and more for a career workshop about the intersection of careers in genetics and support for patients with metabolic disorders. Workshop participants will hear from speakers with real-world experience from a diverse array of careers in genetics and genomics. This is a great opportunity to learn more about further training and internship opportunities. \nMore information about speakers and agenda will be coming soon. \n  \nClick here to register. \nQuestions? Email precisionmedicine@med.unc.edu \n  \n 
URL:https://www.med.unc.edu/ppmh/event/genetics-in-a-day-2026-careers-from-the-bench-to-the-bedside/
LOCATION:Mary Townes Science Building\, NCCU campus\, 1900 Concord St\, Durham\, NC\, 27707\, United States
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