Working Towards Justice and Genetic Health Literacy in Clinical Genomics
2024-05-22 11:00 - 12:30 (America/New_York) | NC
Carolina Seminar Series theme: Science meets society at the intersection between precision medicine and justice, equity, and inclusion
Seminar title: Working Towards Justice and Genetic Health Literacy in Clinical Genomics
Virtual Event
Wednesday May 22nd, 2024, 11:00am-12:30pm
Register here
Event Details:
Featured Speakers: Dr. Janeth Sanchez, PhD, MPH
Program Director for Health Equity at National Institutes of Health
Dr. Janina Jeff, PhD, MS
Bioinformatics Scientist at Illumina
Host of In Those Genes Podcast
Join us for a seminar and panel about working towards justice & genetic health literacy in clinical genomics and the complexity of supporting informed decision making by members of vulnerable or marginalized groups.

Research at UNC with All of Us Data – Getting Started (Workshop #1 of 3)
2024-09-05 11:30 - 13:00 | NC
All Of Us is an NIH-supported research program that brings together academic institutions, healthcare organizations, and community partners to gain deeper insights into human health via data science. With an emphasis on representing diverse US populations, AllOfUs provides access to clinical, genetic, wearables, and personal survey data for over 250K patients in a secure, cloud-hosted analytics environment known as the Researcher Workbench. By collecting such comprehensive health information into a single platform, the program seeks to improve medical research and advance personalized medicine for all.
The Raffield Lab, TISLab, and UNC Program for Precision Medicine in Health Care (PPMH) present a workshop series in fall 2024 to introduce researchers, clinicians, faculty, staff, and students at UNC to both the Researcher Workbench and All Of Us data. Join us to get acquainted this powerful resource and connect with colleagues with similar interests.

Workshop 1 – Thursday September 5, 2024, 11:30am-1:00pm; lunch provided. In-person.

What is All of Us

What data is available

Controlled vs. Registered tier

Data types & workspaces for each data type

Example projects at UNC using All of Us data

Developing project ideas (hands-on)

Financing your All of Us research

Recommended All of Us training to complete on your own before next workshop

Workshop 2 – Thursday October 3, 2024, 12:00-3:00pm; lunch provided. In-person.

How to navigate data interfaces, what kinds of questions can be asked, limitations of data

Cohort building

EHR language (SNOMED etc.)

Cleaning data

Project presentations from researchers at UNC

Establishing interest in working groups with other researchers at UNC

Resources available

Workshop 3 – Thursday October 17, 2024, 11:00am-12:00pm. Virtual.

Working groups

Office hours for project assistance

Click here to register for workshop 1
Questions? Email sabrina_powell@med.unc.edu.

Research at UNC with All of Us Data – Getting Started (Workshop #2 of 3)
2024-10-03 12:00 - 15:00 | NC
All Of Us is an NIH-supported research program that brings together academic institutions, healthcare organizations, and community partners to gain deeper insights into human health via data science. With an emphasis on representing diverse US populations, AllOfUs provides access to clinical, genetic, wearables, and personal survey data for over 250K patients in a secure, cloud-hosted analytics environment known as the Researcher Workbench. By collecting such comprehensive health information into a single platform, the program seeks to improve medical research and advance personalized medicine for all.
The Raffield Lab, TISLab, and UNC Program for Precision Medicine in Health Care (PPMH) present a workshop series in fall 2024 to introduce researchers, clinicians, faculty, staff, and students at UNC to both the Researcher Workbench and All Of Us data. Join us to get acquainted this powerful resource and connect with colleagues with similar interests.

Workshop 1 – Thursday September 5, 2024, 11:30am-1:00pm; lunch provided. In-person.

What is All of Us

What data is available

Controlled vs. Registered tier

Data types & workspaces for each data type

Example projects at UNC using All of Us data

Developing project ideas (hands-on)

Financing your All of Us research

Recommended All of Us training to complete on your own before next workshop

Workshop 2 – Thursday October 3, 2024, 12:00-3:00pm; lunch provided. In-person.

How to navigate data interfaces, what kinds of questions can be asked, limitations of data

Cohort building

EHR language (SNOMED etc.)

Cleaning data

Project presentations from researchers at UNC

Establishing interest in working groups with other researchers at UNC

Resources available

Workshop 3 – Thursday October 17, 2024, 11:00am-12:00pm. Virtual.

Working groups

Office hours for project assistance

Questions? Email sabrina_powell@med.unc.edu.

Research at UNC with All of Us Data – Getting Started (Workshop #3 of 3)
2024-10-17 11:00 - 12:00 | NC

Symposium - Beyond the Horizon: The Changing Landscape of Rare Disease Treatments
2025-02-28 14:00 - 17:00 | MacNider Hall 321, 333 S Columbia St, Chapel Hill, NC, 27599, United States

Research at UNC with All of Us Data – Getting Started (workshop 1 of 3)
2025-04-17 12:30 - 14:00 | Mary Ellen Jones 3116, 116 Manning Dr, Chapel Hill, NC, 27599, United States

Genetics-in-a-Day 2025: Careers from the Bench to the Bedside
2025-04-26 10:00 - 16:00 | Mary Townes Science Building, NCCU campus, 1900 Concord St, Durham, NC, 27707, United States
Registration now open!
Saturday April 26, 2025, 10:00am-4:00pm
Location: Mary Townes Science Building, NCCU campus, Durham NC
Lunch provided with registration.
The UNC Program for Precision Medicine in Health Care’s PARADIGM initiative and the North Carolina Central University Biological & Biomedical Sciences Department present a 1-day career workshop for undergraduate students. The goals of the workshop are to 1) introduce NCCU undergraduates and local community college students to applications of genetics & genomics; 2) increase students’ awareness about potential careers in the field; and 3) highlight opportunities for internships and further training at area institutions. The workshop will consist of concurrent breakout sessions featuring applications of genomics, a poster session, panel discussion, and during lunch students will have the opportunity to chat with career professionals in several related fields.

More information about speakers and agenda will be coming soon.
Click here to register.
Questions? Email precisionmedicine@med.unc.edu

Research at UNC with All of Us Data – Getting Started (workshop 2 of 3)
2025-05-08 12:30 - 14:30 | Mary Ellen Jones 3116, 116 Manning Dr, Chapel Hill, NC, 27599, United States

Research at UNC with All of Us Data – Getting Started (workshop 3 of 3)
2025-05-29 12:30 - 13:30 | Zoom

Symposium - Beyond the Horizon: Charting the Next Era of Rare Disease Progress at UNC
2026-02-27 14:00 - 17:00 | NC

Genetics-in-a-Day 2026: Careers from the Bench to the Bedside
2026-04-18 09:00 - 14:00 | Mary Townes Science Building, NCCU campus, 1900 Concord St, Durham, NC, 27707, United States
When: Saturday April 18, 2026, 9:00am-2:00pm
Where: Mary Townes Science Building, NCCU campus, Durham NC
Cost: free
Lunch provided with registration for students who register by 5:00pm Friday April 10, 2026.
Join speakers from University of North Carolina at Chapel Hill, North Carolina Central University, and more for a career workshop about the intersection of careers in genetics and support for patients with metabolic disorders. Workshop participants will hear from speakers with real-world experience from a diverse array of careers in genetics and genomics. This is a great opportunity to learn more about further training and internship opportunities.
More information about speakers and agenda will be coming soon.

Click here to register.
Questions? Email precisionmedicine@med.unc.edu
