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The UNC National Organization for Rare Disorders (NORD) Center of Excellence and Program for Precision Medicine in Health Care (PPMH) are hosting a symposium on Friday February 28, 2025 from 2:00-5:00pm in MacNider 321.

Speakers will address:

the past, present, and future of rare disease research and treatment at UNC
the family experience with rare disease diagnosis and treatment
rare disease community engagement and philanthropy at UNC

Tentative agenda:

Time	Presentation Length	Speaker	Topic
2:00-2:05	5 min	Jonathan Berg, MD, PhD	Welcome
2:05-2:15	10 min	Muge Calikoglu, MD, MPH	History of Rare Disease Therapeutics at UNC
2:15-2:25	10 min	Sam Young, PhD	Current Rare Disease Therapeutics at UNC
2:25-2:35	10 min	Matthew Hirsch, PhD	Current Rare Disease Therapeutics at UNC
2:35-2:45	10 min	Yael Shiloh-Malawsky, MD	Current Rare Disease Therapeutics at UNC (ForeBatten)
2:45-2:55	10 min	Past & Current Q&A
2:55-3:05	10 min	Yael Shiloh-Malawsky, MD	Future of Rare Disease Therapeutics at UNC (n-Lorem)
3:05-3:15	10 min	Senyene Hunter, MD, PhD	Future of Rare Disease Therapeutics at UNC
3:15-3:25	10 min	Future Q&A
3:25-3:40	15 min	Coffee break
3:40-3:50	10 min	Carlee Friar, BS	Family Experience
3:50-4:00	10 min	Patricia Sullivan, MA	Family Experience
4:00-4:10	10 min	Eleanor Bolton	Family Experience (SMA)
4:10-4:20	10 min	Family Experience Q&A
4:20-4:30	10 min	Karen Hogan / Logan Blinman, MS	Engagement and Philanthropy – Family Advisory Council
4:30-4:40	10 min	Mary Gard, MA	Engagement and Philanthropy – UNC Health Foundation
4:40-4:50	10 min	Engagement and Philanthropy Q&A
4:50-5:00	10 min	Jonathan Berg, MD, PhD & Muge Calikoglu, MD, MPH	Closing Remarks

The symposium will be open for in-person or virtual/Zoom attendance.
The closest visitor parking is at the Dogwood Parking Deck.

Click here to register.

Click here to download the Beyond the Horizon poster.