{"id":7768,"date":"2025-01-28T16:43:54","date_gmt":"2025-01-28T21:43:54","guid":{"rendered":"https:\/\/www.med.unc.edu\/ppmh\/?page_id=7768"},"modified":"2026-02-18T12:19:27","modified_gmt":"2026-02-18T17:19:27","slug":"symposium-beyond-the-horizon","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/ppmh\/initiatives\/education\/symposium-beyond-the-horizon\/","title":{"rendered":"Symposium &#8211; Beyond the Horizon: Charting the Next Era of  Rare Disease Progress at UNC"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-8388\" src=\"https:\/\/www.med.unc.edu\/ppmh\/wp-content\/uploads\/sites\/1356\/2026\/01\/2026-Beyond-the-Horizon-banner.png\" alt=\"\" width=\"1000\" height=\"333\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>The UNC <a href=\"https:\/\/news.unchealthcare.org\/2021\/11\/nord-announces-31-rare-disease-centers-of-excellence\/\">National Organization for Rare Disorders (NORD) Center of Excellence<\/a> and <a href=\"https:\/\/www.med.unc.edu\/ppmh\/\">Program for Precision Medicine in Health Care (PPMH)<\/a> are hosting a symposium on Friday February 27, 2026 from 2:00-5:00pm in MacNider 321.<\/p>\n<p>Speakers will address:<\/p>\n<ul>\n<li>Progress of the UNC Rare Disease Network working groups<\/li>\n<li>Advances in rare disease treatment<\/li>\n<li>Patient &#8211; caregiver panel discussion<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>Tentative agenda:<\/p>\n<table style=\"border-collapse: collapse;width: 100%\">\n<tbody>\n<tr>\n<td style=\"width: 14.0969%\" data-celllook=\"4369\">\n<p><b><span data-contrast=\"none\">Time<\/span><\/b><span data-ccp-props=\"{&quot;134233279&quot;:true,&quot;335551550&quot;:2,&quot;335551620&quot;:2}\">\u00a0<\/span><\/p>\n<\/td>\n<td style=\"width: 12.0044%\" data-celllook=\"4369\">\n<p><b><span data-contrast=\"none\">Length<\/span><\/b><span data-ccp-props=\"{&quot;134233279&quot;:true,&quot;335551550&quot;:2,&quot;335551620&quot;:2}\">\u00a0<\/span><\/p>\n<\/td>\n<td style=\"width: 28.3513%\" data-celllook=\"4369\">\n<p><b><span data-contrast=\"none\">Speaker<\/span><\/b><span data-ccp-props=\"{&quot;134233279&quot;:true,&quot;335551550&quot;:2,&quot;335551620&quot;:2}\">\u00a0<\/span><\/p>\n<\/td>\n<td style=\"width: 45.5474%\" data-celllook=\"4369\">\n<p><b><span data-contrast=\"none\">Topic<\/span><\/b><span data-ccp-props=\"{&quot;134233279&quot;:true,&quot;335551550&quot;:2,&quot;335551620&quot;:2}\">\u00a0<\/span><\/p>\n<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 87px\">2:00-2:05pm<\/td>\n<td style=\"width: 12.0044%;height: 87px\">5 min<\/td>\n<td style=\"width: 28.3513%;height: 87px\">Liz Jalazo, MD<\/td>\n<td style=\"width: 45.5474%;height: 87px\">Introduction<\/td>\n<\/tr>\n<tr style=\"height: 43px\">\n<td style=\"width: 14.0969%;height: 162px\">2:05-2:35pm<\/td>\n<td style=\"width: 12.0044%;height: 162px\">30 min<\/td>\n<td style=\"width: 28.3513%;height: 162px\">Mike Adams, MD<br \/>\nSabrina Powell, PhD<br \/>\nRebecca Traub, MD<br \/>\nLiz Hutchins, MS<\/td>\n<td style=\"width: 45.5474%;height: 162px\">Summary of Progress to Date from Each Working Group in the UNC Rare Disease Network<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 78px\">2:35-3:00pm<\/td>\n<td style=\"width: 12.0044%;height: 78px\">25 min<\/td>\n<td style=\"width: 28.3513%;height: 78px\">Muge Calikoglu, MD, MPH<\/td>\n<td style=\"width: 45.5474%;height: 78px\">Current Events in the Rare Disease World and Here at UNC<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 139px\">3:00-3:35pm<\/td>\n<td style=\"width: 12.0044%;height: 139px\">35 min<\/td>\n<td style=\"width: 28.3513%;height: 139px\">Sam Young, PhD<br \/>\nMatthew Hirsch, PhD<br \/>\nTierra Bobo, PhD<\/td>\n<td style=\"width: 45.5474%;height: 139px\"><span class=\"NormalTextRun SCXW11690567 BCX0\">Updates in New Drugs\/Therapie<\/span><span class=\"NormalTextRun SCXW11690567 BCX0\">s<\/span><span class=\"NormalTextRun SCXW11690567 BCX0\">\u00a0that are Available at UNC<\/span><\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 23px\">3:35-4:00pm<\/td>\n<td style=\"width: 12.0044%;height: 23px\">25 min<\/td>\n<td style=\"width: 28.3513%;height: 23px\">N\/A<\/td>\n<td style=\"width: 45.5474%;height: 23px\">Coffee Break &amp; Networking<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 23px\">4:00-4:25pm<\/td>\n<td style=\"width: 12.0044%;height: 23px\">25 min<\/td>\n<td style=\"width: 28.3513%;height: 23px\">Diana Cejas, MD, MPH<\/td>\n<td style=\"width: 45.5474%;height: 23px\">Transition in Patient Care from Pediatrics to Adult<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 23px\">4:25-4:55pm<\/td>\n<td style=\"width: 12.0044%;height: 23px\">30 min<\/td>\n<td style=\"width: 28.3513%;height: 23px\">Patricia Sullivan, MA<\/td>\n<td style=\"width: 45.5474%;height: 23px\">Fireside Chat: Patient-Caregiver Panel<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 14.0969%;height: 23px\">4:55-5:00pm<\/td>\n<td style=\"width: 12.0044%;height: 23px\">5 min<\/td>\n<td style=\"width: 28.3513%;height: 23px\">Liz Jalazo, MD<\/td>\n<td style=\"width: 45.5474%;height: 23px\">Wrap-up<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<p>Registration is open to everyone, and the symposium will offer in-person or virtual\/Zoom attendance.\u00a0<br \/>\nThe closest visitor parking is at the Dogwood Parking Deck.<\/p>\n<h2><a href=\"http:\/\/apps2.research.unc.edu\/events\/index.cfm?event=events.go&amp;key=CCF3\">Click here to register.<\/a><\/h2>\n<p class=\"lead\">Download the <a href=\"https:\/\/www.med.unc.edu\/ppmh\/wp-content\/uploads\/sites\/1356\/2026\/01\/2026-Beyond-the-Horizon-poster.pdf\">Beyond the Horizon poster.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; The UNC National Organization for Rare Disorders (NORD) Center of Excellence and Program for Precision Medicine in Health Care (PPMH) are hosting a symposium on Friday February 27, 2026 from 2:00-5:00pm in MacNider 321. Speakers will address: Progress of the UNC Rare Disease Network working groups Advances in rare disease treatment Patient &#8211; caregiver &hellip; <a href=\"https:\/\/www.med.unc.edu\/ppmh\/initiatives\/education\/symposium-beyond-the-horizon\/\" aria-label=\"Read more about Symposium &#8211; Beyond the Horizon: Charting the Next Era of  Rare Disease Progress at UNC\">Read more<\/a><\/p>\n","protected":false},"author":80420,"featured_media":0,"parent":6084,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-7768","page","type-page","status-publish","hentry","odd"],"acf":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/pages\/7768","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/users\/80420"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/comments?post=7768"}],"version-history":[{"count":23,"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/pages\/7768\/revisions"}],"predecessor-version":[{"id":8508,"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/pages\/7768\/revisions\/8508"}],"up":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/pages\/6084"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/ppmh\/wp-json\/wp\/v2\/media?parent=7768"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}