{"id":2502,"date":"2025-04-24T12:34:18","date_gmt":"2025-04-24T16:34:18","guid":{"rendered":"https:\/\/www.med.unc.edu\/raredisease\/?page_id=2502"},"modified":"2025-08-13T16:59:21","modified_gmt":"2025-08-13T20:59:21","slug":"national-organization-for-rare-disorders-nord-center-of-excellence","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/raredisease\/for-health-care-professionals\/national-organization-for-rare-disorders-nord-center-of-excellence\/","title":{"rendered":"Resources from the National Organization for Rare Disorders (NORD) Center of Excellence"},"content":{"rendered":"<h2><a href=\"https:\/\/rarediseases.org\/living-with-a-rare-disease\/how-nord-can-help\/\">NORD Resources<\/a><\/h2>\n<p>General overview of NORD resources for patients with rare diseases, including how to access financial help.<\/p>\n<h2><a href=\"https:\/\/rarediseases.org\/events\/\">NORD Events<\/a><\/h2>\n<p style=\"font-weight: 400;\">Various NORD events, from state-level to national events happening.<\/p>\n<h2><a href=\"https:\/\/rarediseases.org\/living-with-a-rare-disease\/getting-help-and-support\/\">NORD FAQ\u2019s<\/a><\/h2>\n<p>FAQ\u2019s including topics such as \u201cWhat is a rare disease?\u201d, \u201cWhat is Genetic Counseling?\u201d, and \u201cWhat are Orphan Drugs?\u201d<\/p>\n<h2><a href=\"https:\/\/www.claimyourcare.org\">NORD Health Coverage Literacy Assistance<\/a><\/h2>\n<p><span style=\"font-family: arial, sans-serif;\">A new NORD website <\/span>which aims to enhance health coverage literacy by helping rare disease Patient Advocacy Groups (PAGs), patients, and caregivers better understand and navigate health insurance and coverage-related challenges.<\/p>\n<h2><a href=\"https:\/\/rarediseases.org\/patient-organizations\/\">NORD Patient Organizations<\/a><\/h2>\n<p style=\"font-weight: 400;\">A database to search for different patient organizations.<\/p>\n<h2><a href=\"https:\/\/rareaction.org\/resources-for-advocates\/state-profiles\/north%20carolina\/\">NORD Rare Action Network<\/a><\/h2>\n<p>NC-specific information, including the patient advocacy arm of NORD and the NC State Ambassador, Patricia Sullivan.<\/p>\n<h2><a href=\"https:\/\/rarediseases.org\/clinicians-researchers\/\">NORD Resources for Clinicians and Researchers<\/a><\/h2>\n<p>General page for clinicians\/researchers.<\/p>\n<h2><a href=\"https:\/\/rarediseases.org\/nord-en-espanol\/\">NORD Spanish Language Page<\/a><\/h2>\n<p>Spanish page of NORD website.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>NORD Resources General overview of NORD resources for patients with rare diseases, including how to access financial help. NORD Events Various NORD events, from state-level to national events happening. NORD FAQ\u2019s FAQ\u2019s including topics such as \u201cWhat is a rare disease?\u201d, \u201cWhat is Genetic Counseling?\u201d, and \u201cWhat are Orphan Drugs?\u201d NORD Health Coverage Literacy Assistance &hellip; <a href=\"https:\/\/www.med.unc.edu\/raredisease\/for-health-care-professionals\/national-organization-for-rare-disorders-nord-center-of-excellence\/\" aria-label=\"Read more about Resources from the National Organization for Rare Disorders (NORD) Center of Excellence\">Read more<\/a><\/p>\n","protected":false},"author":120676,"featured_media":0,"parent":2302,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-2502","page","type-page","status-publish","hentry","odd"],"acf":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2502","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/users\/120676"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/comments?post=2502"}],"version-history":[{"count":13,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2502\/revisions"}],"predecessor-version":[{"id":2807,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2502\/revisions\/2807"}],"up":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2302"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/media?parent=2502"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}