{"id":2896,"date":"2025-09-08T15:28:39","date_gmt":"2025-09-08T19:28:39","guid":{"rendered":"https:\/\/www.med.unc.edu\/raredisease\/?page_id=2896"},"modified":"2026-03-11T10:42:41","modified_gmt":"2026-03-11T14:42:41","slug":"rare-disease-day-symposiums","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/raredisease\/rare-disease-working-groups\/rde3\/rare-disease-day-symposiums\/","title":{"rendered":"Rare Disease Day Symposiums"},"content":{"rendered":"<p>The UNC <a href=\"https:\/\/news.unchealthcare.org\/2021\/11\/nord-announces-31-rare-disease-centers-of-excellence\/\">National Organization for Rare Disorders (NORD) Center of Excellence<\/a> and <a href=\"https:\/\/www.med.unc.edu\/ppmh\/\">Program for Precision Medicine in Health Care (PPMH)<\/a> have come together to host two symposiums on Rare Disease Day (2025 &amp; 2026).<\/p>\n<p>Speakers have addressed:<\/p>\n<ul>\n<li>UNC Rare Disease Network Working Groups<\/li>\n<li>Advances in Rare Disease Treatments at UNC<\/li>\n<li>Pediatric to Adult Transitions for Rare Disease Patients<\/li>\n<li>Facilitation of a Patient-Caregiver Panel Discussion<\/li>\n<\/ul>\n<h3>2026 Event Recording:<\/h3>\n<p style=\"text-align: center\">\n<!-- iframe plugin v.5.2 wordpress.org\/plugins\/iframe\/ -->\n<iframe loading=\"lazy\" src=\"https:\/\/uncch.hosted.panopto.com\/Panopto\/Pages\/Embed.aspx?id=da2f78a6-3b8a-4914-a087-b4010133f331&#038;autoplay=false&#038;offerviewer=true&#038;showtitle=true&#038;showbrand=true&#038;captions=true&#038;interactivity=all\" width=\"100%\" height=\"500\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\"><\/iframe>\n\n<h3>2025 Event Recording:<\/h3>\n<p style=\"text-align: center\">\n<!-- iframe plugin v.5.2 wordpress.org\/plugins\/iframe\/ -->\n<iframe loading=\"lazy\" src=\"https:\/\/uncch.hosted.panopto.com\/Panopto\/Pages\/Embed.aspx?id=02bea2ee-f9a7-41d2-aa0b-b324016253a1&#038;amp;autoplay=false&#038;amp;offerviewer=true&#038;amp;showtitle=false&#038;amp;showbrand=false&#038;amp;captions=true&#038;amp;start=0&#038;amp;interactivity=all\" height=\"400\" width=\"850\" style=\"border: 1px solid #464646;\" 0=\"allowfullscreen\" allow=\"autoplay\" title=\"Beyond the Horizon: The Changing Landscape of Rare Disease Treatments\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\"><\/iframe>\n\n","protected":false},"excerpt":{"rendered":"<p>The UNC National Organization for Rare Disorders (NORD) Center of Excellence and Program for Precision Medicine in Health Care (PPMH) have come together to host two symposiums on Rare Disease Day (2025 &amp; 2026). Speakers have addressed: UNC Rare Disease Network Working Groups Advances in Rare Disease Treatments at UNC Pediatric to Adult Transitions for &hellip; <a href=\"https:\/\/www.med.unc.edu\/raredisease\/rare-disease-working-groups\/rde3\/rare-disease-day-symposiums\/\" aria-label=\"Read more about Rare Disease Day Symposiums\">Read more<\/a><\/p>\n","protected":false},"author":85590,"featured_media":0,"parent":2389,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"layout":"","cellInformation":"","apiCallInformation":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-2896","page","type-page","status-publish","hentry","odd"],"acf":[],"_links_to":[],"_links_to_target":[],"_links":{"self":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2896","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/users\/85590"}],"replies":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/comments?post=2896"}],"version-history":[{"count":32,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2896\/revisions"}],"predecessor-version":[{"id":3178,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2896\/revisions\/3178"}],"up":[{"embeddable":true,"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/pages\/2389"}],"wp:attachment":[{"href":"https:\/\/www.med.unc.edu\/raredisease\/wp-json\/wp\/v2\/media?parent=2896"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}