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SUMMARY:ELSI Friday Forum - Rigor\, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
DESCRIPTION:Rigor\, Reproducibility and Responsibility: ELSI Questions in Population Data Practices\nwith speakers Anne Flanagin\, RN\, MA\, FAAN\, Genevieve Wojcik\, PhD\, MHS\, and moderator Aliya Saperstein\, PhD. \nAs large-scale genomic data sets are increasingly linked\, harmonized\, and repurposed across studies\, questions about how to meaningfully define and compare population descriptors have taken on renewed urgency. This panel brings together members of recent National Academies of Sciences\, Engineering\, and Medicine committees and a leading medical journal editor that have offered guidance surrounding the use of population labels in biomedical research. Panelists will explore the scientific and ethical implications of existing classification practices\, the challenges of ensuring analytic rigor across studies that use heterogeneous descriptors\, and the responsibilities of researchers\, funders\, and journals in advancing transparent\, reproducible\, and scientifically rigorous practices. \n\nClick here to register.
URL:https://www.med.unc.edu/socialmed/event/elsi-friday-forum-rigor-reproducibility-and-responsibility-elsi-questions-in-population-data-practices/
LOCATION:Zoom
ORGANIZER;CN="UNC Center for the ELSI of Biotechnology":MAILTO:kriste.kuczynski@unc.edu
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DTSTART;TZID=America/New_York:20230120T120000
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SUMMARY:Beyond the Medical:  Genetic Testing for Social Traits
DESCRIPTION:Virtual Webinar \nhttps://zoom.us/webinar/register/WN_Li3T_5AdQ3alvj5J6EsBLg \nIn traditional predictive genetic testing\, single gene variants are analyzed to determine whether individuals are at high risk of developing disease. The vast majority of diseases\, however\, are polygenic – caused by many different genes. Polygenic risk scores (PRS) hold promise to predict risk for complex diseases like heart disease or diabetes by measuring the contribution of hundreds of genetic variants at once. Yet beyond prediction of medical outcomes\, the realm of ‘sociogenomics’ is developing polygenic scores (PGS) measuring genetic contributions to social traits and behavioral factors\, such as income\, educational attainment\, sexuality\, and optimism. This presentation will present initial findings of a newly-funded NIH grant to study these complex scores. \n  \nAnya Prince is an Associate Professor of Law and member of the University of Iowa Genetics Cluster. Her teaching and research interests explore the ethical\, legal\, and social implications of genomic testing\, with particular focus on genetic discrimination and privacy rights\, the intersection of clinical and research ethics\, and insurance coverage of genetic technologies and interventions. \n \nJean Cadigan is Associate Professor of Social Medicine and a core faculty member in the Center for Bioethics at the University of North Carolina\, Chapel Hill. Her teaching and research interests focus broadly on clinical and research ethics. She primarily conducts empirical studies that focus on the ethical\, legal\, and social implications of genomic research and practice from the point of view of patients\, research participants\, clinicians\, scientists\, and policy makers. \nBTM 2023.01.20 \n  \nSponsored by:
URL:https://www.med.unc.edu/socialmed/event/beyond-the-medical-genetic-testing-for-social-traits/
LOCATION:Zoom
ORGANIZER;CN="Kriste Kuczynski":MAILTO:kriste.kuczynski@unc.edu
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