Addressing Algorithmic Harms: Practices and Provocations for Health AI Unique threats to patient safety and well-being from artificial intelligence (AI) in health care applications, such as bias, are now well-recognized. At the same time, policy makers and regulators are grappling with the challenges of evaluating and regulating AI-based technologies in order to minimize these threats. …
The University of North Carolina (UNC) Center for Genomics and Society (CGS) and the Center for Bioethics (C:B), together with the Program for Precision Medicine in Health Care (PPMH), announce a joint postdoctoral position in clinical ethics and the ethical, legal, and social implications (ELSI) of precision medicine. This two-year fellowship will begin in September …
Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics — New genetic technologies have incrementally but steadily altered the landscape of human reproduction. These technologies include polygenic risk scores coupled with embryo selection, fetal testing using DNA sequencing or non-invasive prenatal testing, and reproductive carrier screening. However, the broad use of and access to …
Virtual Workshop January 11 – 12, 2022 This jointly supported NIEHS/NHGRI virtual workshop is meant to explore ethical, legal, and social implications (ELSI) in research endeavors related to gene-environment interaction (GxE) and genetic susceptibility to environmental exposures. As funding for more biomedical and behavioral research to explore those interactions increases, potentially novel ELSI issues are rapidly emerging. The …
Request for Abstracts The 5th ELSI Congress ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 – Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research and its translation aims to anticipate and illuminate emerging issues relevant to policy and practice and fundamental questions of what it …
Realizing the Full Potential of Health for All Through Genomics and Precision Health: A discussion with the National Academies Genomics Roundtable Oct 20, 2021 07:00 PM Eastern Time (US and Canada) — On Wednesday, October 20, 2021, the Roundtable on Genomics and Precision Health will host a virtual open house from 7:00 PM – 8:00 PM ET as …
ELSIconversations is a series of networking events on ELSI research. Each series will bring something new to the conversation, be it a series on research methods, latest developments in a particular field, trainee presentations, or any topic suggested by our community of ELSI researchers and those with an interest in ELSI research. Series 1 – Winter/Spring 2021 – focused on …
Human Nature Panel Discussion: Editing Along Ethical Boundaries — Oct 21, 2020 11:00 AM Please click here to view the Panel Discussion. Human Nature tells the story of the biggest tech revolution of the 21st century. A breakthrough called CRISPR has given us unprecedented control over the basic building blocks of life. It opens the …
We would like to draw to your attention to three Administrative Supplement Opportunities for current NHGRI grantees. If you are interested in exploring any of these opportunities further, please contact the NHGRI Program Officer assigned to your current grant. Notice to Encourage Eligible NHGRI Awardees to Apply for PA-18-906 “Research Supplements to Promote Diversity …
The Lecture Capture of the January 30 presentation by Vence Bonham, Jr. J. D. is now available. Visit http://go.unc.edu/Pp3e8 — Description: The National Academies of Sciences 2017 Human Genome Editing Report identified seven principles that should undergird the oversight systems, research surrounding, and eventual clinical uses of human genome editing: (1) promoting well-being, (2) transparency, …