News and Events

      Abstracts are now being accepted for the 7th ELSI Congress, which will be held on June 22 – 24, 2026 in Chapel Hill, NC. The submission period is January 16 – February 16. For over three decades, the National Human Genome Research Institute’s Ethical, Legal, and Social...

Save the Date CRISPR Therapies for Rare Pediatric Disease More information coming soon!

Dextinction and Deliberate Extinction From the dire wolf to the screwworm, scientists are turning the tools of genetics to the elimination–and recreation–of entire nonhuman species. This webinar explores how and why genetic technologies might be used to eradicate some species and recreate others, with a focus on recent efforts and...

    CALL FOR ABSTRACTS Celebrating 25 Years of the ELSI Congress The 25th anniversary of the first ELSI Congress offers an opportunity to reflect on the field’s evolving questions, collaborations, and debates and to consider how work on ethical, legal, and social implications (ELSI) can respond to future developments...

What do researchers owe the Autistic community? with panelists Monique Botha, PhD and Tara Eicher, PhD, and moderator Ari Ne’eman, PhD Click here to register.

June 22-24, 2026, at the Friday Conference Center in Chapel Hill, NC  

NC Law Review Symposium at the UNC School of Law Articles and Authors: Overview: Neuroscience and the Law John M. Conley & Rami M. Major The Brain, Neuroethics, and Bioethics Leslie C. Griffin Post-trial Access to Beneficial Investigational Neural Devices Alex Foulkes Grafton & Gabriel LázaroMuñoz Off-Label Neuroimaging Jane Campbell...

Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists Jessica Mozersky, PhD (Washington University in St. Louis) and Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer’s disease (AD) research...

ELSI Friday Forum | ELSI and the Sale of Genetic Data: The Case of 23andMe with speakers Sara Gerke, JD, Neil Richards, JD, and moderator Anya Prince, JD. Genetic and associated health data of millions are collected and held by biobanks, DTC companies, pharmacies, academic medical centers, hospitals, technology companies and other...

Biosecurity in the Age of AI and Genomics with speakers Jassi Pannu, MD, Gigi Gronvall, PhD, and moderator Stephanie Guerra, PhD. The convergence of AI and biotechnology is reshaping both the promise and the peril of biological research, potentially increasing beneficial capabilities to achieve new therapeutics faster while also introducing new risks that...