News and Events

Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices with speakers Anne Flanagin, RN, MA, FAAN, Genevieve Wojcik, PhD, MHS, and moderator Aliya Saperstein, PhD. As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and compare population descriptors have taken on renewed...

Jonathan Engel, PhD This virtual Columbia Ethics Grand Rounds took place on May 13, 2025. https://www.mhe.cuimc.columbia.edu/news/ethics-grand-rounds-great-friendship-evolution-government-university-science-partnership-united-states   Resource List Bush, V. (1980). Science: The Endless Frontier. (link is external and opens in a new window)National Science Foundation. Engel, J. (2023). Transforming American Science: Universities, the Government, and the Cold War(link...

Tuesday, May 6 4:00—5:00pm ET Roper Hall 6310 or via Zoom Presented by Richard Sharp, Ph.D. Lloyd A. and Barbara A. Amundson Professor of Biomedical Ethics and Professor of Medicine, Mayo Clinic Director of the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program, and the Clinical and Translational...

Tuesday, May 6 12:00—1:00pm ET   Virtual Presentation by Juliann Savatt, MS, CGC Assistant Professor, Genomic Health, Geisinger Co-director, Geisinger MyCode Genomic Screening and Counseling Program Currently, identification of individuals with genomic risk remains largely dependent on clinical testing that relies on a personal/family history of disease and access to...

Launch Event: March 28, 2025   CERA is thrilled to introduce our new event series, ELSI Journal Club, a forum for engaging with groundbreaking research that addresses the ethical, legal, and social implications (ELSI) of clinical genetics, featured in our journal partner, Genetics in Medicine. This series aims to engage...

AI in Genomics and Genetic Counseling: Ethical, Legal and Social Issues. 🧬 Hosted by The Jackson Laboratory for Genomic Medicine Katya Orlova, a Variant Assessment Scientist at Ambry Genetics Date: Friday, March 7, 2025 Time: 12:00 pm EST Register here for the Zoom link:https://lnkd.in/gzJ_Sugs ✅ CEU Credits for Genetic Counselors:...

ELSIhub Collections are essential reading lists on fundamental or emerging topics in ELSI, curated and explained by expert Collection Editors, often paired with ELSI trainees. This series assembles materials from cross-disciplinary literatures to enable quick access to key information.   Visit this link for more information: https://elsihub.org/resources/collections

Public-Private Partnerships for Gene Therapies: What Does the Public Get? Join us on Friday, January 10 at 12pm ET for ELSI Friday Forum: Public-Private Partnerships for Gene Therapies: What Does the Public Get?,  with speakers: John Conley, JD, PhD, University of North Carolina at Chapel Hill School of Law Eva Winkler, Prof, Dr.med., Dr.phil., Section for Translational...

Building a Diverse ELSI Workforce: What does this mean and how should we do it? Join us on Friday, December 13 at 12pm ET for ELSI Friday Forum: Building a Diverse ELSI Workforce: What does this mean and how should we do it?,  with speakers: Faith Fletcher, PhD, MA, Center for Medical Ethics & Health Policy, Baylor College of Medicine Debra Matthews, PhD, MA, Johns Hopkins...

Date: Friday, November 22 Time: 12:00pm—1:00pm Place: Roper Hall 6310 Lunch will be provided for in-person attendees. Please register to attend. https://go.unc.edu/prenatalgene   Presented by Rami M. Major, Ph.D., Postdoctoral Fellow in the ELSI of Precision Medicine and Other Biotechnologies Neurodevelopmental diseases (NDDs) are notoriously difficult to treat because clinical...