News and Events

Making Genomics Matter: Science, Storytelling, and Public Engagement Speakers: Tina Lasasi, PhD, Janina Jeff, PhD, MS Moderator: Grace Byfield, PhD Register here.

Uncovering the Past Responsibly: Exploring Ethical Challenges and Recommendations of Ancient DNA Research Ancient DNA research is transforming how scholars reconstruct population histories, yet these tools operate within scientific and political landscapes that shape whose ancestors are studied, how consent is interpreted, and which communities bear the consequences of genomic...

      For over three decades, the National Human Genome Research Institute’s Ethical, Legal, and Social Implications (ELSI) Research Program has advanced scholarship on the ELSI of genetics and genomics. The ELSI Congress brings together scholars who are dedicated to understanding and shaping the impact of genomic science on...

 Just CRISPR: Is interventional genetics for rare diseases scalable? In 2025, KJ Muldoon was the first patient to be treated for a life-threatening genetic disorder with gene editing therapy. KJ received a diagnosis of severe carbamoyl-phosphate synthetase 1 deficiency (CPS1) as a neonate, and received treatment when he was 7...

Dextinction and Deliberate Extinction From the dire wolf to the screwworm, scientists are turning the tools of genetics to the elimination–and recreation–of entire nonhuman species. This webinar explores how and why genetic technologies might be used to eradicate some species and recreate others, with a focus on recent efforts and...

    CALL FOR ABSTRACTS Celebrating 25 Years of the ELSI Congress The 25th anniversary of the first ELSI Congress offers an opportunity to reflect on the field’s evolving questions, collaborations, and debates and to consider how work on ethical, legal, and social implications (ELSI) can respond to future developments...

What do researchers owe the Autistic community? with panelists Monique Botha, PhD and Tara Eicher, PhD, and moderator Ari Ne’eman, PhD Click here to register.

June 22-24, 2026, at the Friday Conference Center in Chapel Hill, NC  

NC Law Review Symposium at the UNC School of Law Articles and Authors: Overview: Neuroscience and the Law John M. Conley & Rami M. Major The Brain, Neuroethics, and Bioethics Leslie C. Griffin Post-trial Access to Beneficial Investigational Neural Devices Alex Foulkes Grafton & Gabriel LázaroMuñoz Off-Label Neuroimaging Jane Campbell...

Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists Jessica Mozersky, PhD (Washington University in St. Louis) and Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer’s disease (AD) research...