Publications | Intellectual & Developmental Disabilities Health Services Study

The Disrupting the Cycle team is currently drafting and submitting manuscripts for peer-reviewed publication from the current phase of this research. This page will be updated as publications are accepted.

From Disrupting the Cycle

Johnson, K. R., Mitchell, S., & Parkin, R. (2026) Using the world café to elicit provider perspectives on pathways to health for Black adults with intellectual and developmental disabilities. Journal of Participatory Research Methods, 7(1). https://doi.org/10.35844/001c.155403

Johnson K., Parkin, R., & Mitchell, S. (2026). Occupational therapy perspectives on healthcare enablers and challenges in serving Black people with IDD. OTJR: Occupational Therapy Journal of Research, 0(0). https://doi.org/10.1177/15394492261422692

Johnson, K. R., Mitchell, S. Parkin, R., Peak, K., Chavis, C., Cleveland, S., Comer, K., Cross, C., Hawkins, T., Ingram, C., Johnson, T., & Jones, A. (2025). Systemic inequities in healthcare: Lessons learned from Black people with IDD and their care partners. Progress in Community Health Partnerships, 19(3), 297–306. https://doi.org/10.1353/cpr.2025.a970151

Relevant Publications

Dr. Khalilah Johnson’s clinical experience as an occupational therapist working with individuals with intellectual and developmental disabilities has shaped her research interests in the pursuit of justice for those who are often forgotten in the healthcare system. Dr. Johnson’s past research has informed the structure, process, and outcomes of Disrupting the Cycle. Selected publications are listed below.

Johnson, K., Annis, I., & Thomas, K. (2026). Measuring the association of race, neighborhood segregation, and healthcare use among people with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 1–13. https://doi.org/10.1080/19447558.2026.2616203

Johnson, K., Bogenschutz, M., & Peak, K. (2021). Propositions for race-based research in intellectual and developmental disabilities. Inclusion, 9(3), 156–169. https://doi.org/10.1352/2326-6988-9.3.156

Johnson, K., & Bagatell, N. (2020). Negotiating tensions on the front-line: Circuits of accountability and self-governance in institutional care of adults with intellectual disability. Work, Employment, and Society, 34(4), 644–660. https://doi.org/10.1177/0950017019872647

Belgrave, F.Z., Gary, K.W., & Johnson, K. (2019). Culture, race, and disability. In: D. Dunn (Ed.), Understanding the experience of disability: Perspectives from social and rehabilitation psychology. (pp. 122-136). Oxford University Press.

Bogenschutz, M., Dinora, P., & Johnson. K. (2019). Case management workforce supporting people with ID/DD: Indications of a new frontier of the workforce crisis. Intellectual and Developmental Disabilities, 57(6), 499–511. https://doi.org/10.1352/1934-9556-57.6.499

Johnson, K., Blaskowitz, M., & Mahoney, W. (2019). Occupational therapy practice with adults with intellectual disability: What more can we do? The Open Journal of Occupational Therapy, 7(2), 1–6. https://doi.org/10.15453/2168-6408.1573

Gary, K.W., Sima, A., Wehman, P., & Johnson, K. (2018). Transitioning racial/ethnic minorities with intellectual and developmental disabilities: Influence of socioeconomic status on related services. Career Development and Transition Exceptional Individuals, 42(3), 158–167. https://doi.org/10.1177/2165143418778556

Johnson, K., & Bagatell, N. (2018). “No! You can’t have it.”: Problematizing choice in institutionalized adults with intellectual disabilities. Journal of Occupational Science, 24(1), 69–84. https://doi.org/10.1177/1744629518766121

Johnson, K., & Bagatell, N. (2017). Beyond custodial care: Mediating choice and participation for adults with intellectual disabilities. Journal of Occupational Science, 24(4), 546–560. https://doi.org/10.1080/14427591.2017.1363078