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Virtual Event for CME Credit – Genetic Testing in OBGYN: Updates and Practice Guidelines

The UNC Rare Disease Network is hosting an upcoming, virtual event for OBGYNs: “Genetic Testing in OBGYN: Updates and Practice Guidelines” This virtual, interactive event is part one of a three-part series which focuses on genetic testing in OBGYN such as NIPT (Non-invasive prenatal testing), carrier screening, and WES/WGS (Whole-Exome...

Symposium – Beyond the Horizon: Charting the Next Era of Rare Disease Progress at UNC

January 15, 2026

UNC’s Samuel Young, Jr, PhD Shares Insights on Science and Hope in Rare Disease Research – Listen Here!

October 30, 2025

Samuel Young, Jr, PhD, Director of the Center for Molecular Medicine and professor of Pediatrics at the UNC School of Medicine, spoke with Rare Awareness Radio to discuss an inspiring conversation about science, persistence, and hope for the rare disease community.

Virtual Event for CME Credit – Primary Care: The Unsung Heroes in Rare Disease Diagnostics

October 16, 2025

The UNC Rare Disease Network is hosting an upcoming, virtual event for primary care providers: “Primary Care: The Unsung Heroes in Rare Disease Diagnostics” This virtual, interactive event focuses on the diagnostic odyssey and how genetic testing can be implemented to help clinicians better support patient care. The presentation is...

Participate in the Rare Diseases Are Not Rare! 2025 Challenge Prize Competition

October 15, 2025

More than 10,000 known rare diseases affect millions of people across the United States. The NIH wants to help raise awareness about rare diseases, the people and families they impact and the need for research and development of treatment strategies for addressing multiple rare diseases at a time. They are...