The National MPS Society will host a timed 5K run and 1 mile walk, beginning at 9 AM on Saturday, March 28.  The 1 mile walk will begin at 9:05 AM.  Packet pickup and day of registration will open at 7:30 AM.  A picnic for attendees and volunteers will be held after the race! This … Read more

Over 20 million people in the U.S. live with a rare disease, and many face years of uncertainty and delayed diagnosis. The National Academies’ Forum on Advancing Diagnostic Excellence will host a public webinar on November 6 exploring opportunities to improve rare disease diagnosis and the patient journey towards a timely and accurate diagnosis. Discussions … Read more