Resources from the National Organization for Rare Disorders (NORD) Center of Excellence

NORD Resources

General overview of NORD resources for patients with rare diseases, including how to access financial help.

NORD Events

Various NORD events, from state-level to national events happening.

NORD FAQ’s

FAQ’s including topics such as “What is a rare disease?”, “What is Genetic Counseling?”, and “What are Orphan Drugs?”

NORD Health Coverage Literacy Assistance

A new NORD website which aims to enhance health coverage literacy by helping rare disease Patient Advocacy Groups (PAGs), patients, and caregivers better understand and navigate health insurance and coverage-related challenges.

NORD Patient Organizations

A database to search for different patient organizations.

NORD Rare Action Network

NC-specific information, including the patient advocacy arm of NORD and the NC State Ambassador, Patricia Sullivan.

NORD Resources for Clinicians and Researchers

General page for clinicians/researchers.

NORD Spanish Language Page

Spanish page of NORD website.