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Balancing Data Privacy and Data Sharing:
Normative and Technical Approaches


To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to individuals and groups, and threatens autonomy and control over data use. Data sharing policies, governance strategies and technical solutions have been proposed and implemented to resolve this tension. However, full resolution of this issue has not been achieved. What do ELSI scholars, data scientists, policy makers, health researchers and other stakeholders need to do to move forward? Join the discussion with panelists Bradley Malin, PhD and Effy Vayena, PhD moderated by Lucila Ohno-Machado, MD, PhD.


Register for the April 8 Friday Forum


Mark your calendar for the Post-Forum Discussion, a half-hour informal networking session for audience members who would like to continue the conversation following the Forum.  A Zoom link to the networking session will be provided in the Zoom Chat before the end of the forum and emailed to all registrants.