What Do China’s Recent Gene Editing Deaths Mean for CRISPR Research? Moderator: Josephine Johnston LLB(hons), MBHL Presenter: Holly Fernandez Lynch, JD, MBe, Françoise Baylis C.M., O.N.S, PhD, FRSC, FISC Register here.
The 7th ELSI Congress took place in Chapel Hill, North Carolina, on June 22-24, 2026 and brought together a diverse community of researchers, clinicians, trainees, policymakers, and community partners from around the world. On-line and on-site participants engaged in thought-provoking plenary sessions, workshops, paper presentations, and networking opportunities that fostered new collaborations and advanced conversations …
for more information about the 2028 ELSI Congress. In the meantime, we encourage you to sign up for ELSIconnect. ELSIconnect is a secure online networking and discussion platform hosted on ELSIhub for professionals and trainees studying the ethical, legal, and social implications (ELSI) of genetics and genomics. It allows members to connect, share resources, brainstorm …
Making Genomics Matter: Science, Storytelling, and Public Engagement Speakers: Tina Lasasi, PhD, Janina Jeff, PhD, MS Moderator: Grace Byfield, PhD Register here.
Uncovering the Past Responsibly: Exploring Ethical Challenges and Recommendations of Ancient DNA Research Ancient DNA research is transforming how scholars reconstruct population histories, yet these tools operate within scientific and political landscapes that shape whose ancestors are studied, how consent is interpreted, and which communities bear the consequences of genomic discovery. When genetic data are …
For over three decades, the National Human Genome Research Institute’s Ethical, Legal, and Social Implications (ELSI) Research Program has advanced scholarship on the ELSI of genetics and genomics. The ELSI Congress brings together scholars who are dedicated to understanding and shaping the impact of genomic science on society, and to share research, …
Just CRISPR: Is interventional genetics for rare diseases scalable? In 2025, KJ Muldoon was the first patient to be treated for a life-threatening genetic disorder with gene editing therapy. KJ received a diagnosis of severe carbamoyl-phosphate synthetase 1 deficiency (CPS1) as a neonate, and received treatment when he was 7 months old, under Expanded Access …
Dextinction and Deliberate Extinction From the dire wolf to the screwworm, scientists are turning the tools of genetics to the elimination–and recreation–of entire nonhuman species. This webinar explores how and why genetic technologies might be used to eradicate some species and recreate others, with a focus on recent efforts and near future possibilities. The ethics …
CALL FOR ABSTRACTS Celebrating 25 Years of the ELSI Congress The 25th anniversary of the first ELSI Congress offers an opportunity to reflect on the field’s evolving questions, collaborations, and debates and to consider how work on ethical, legal, and social implications (ELSI) can respond to future developments and challenges. Join us in …
What do researchers owe the Autistic community? with panelists Monique Botha, PhD and Tara Eicher, PhD, and moderator Ari Ne’eman, PhD Click here to register.