Center for Genomics and Society Seminar co-hosted by the UNC Center for Bioethics Date: Wednesday, May 8 Time: 12:00 pm—1:00 pm Location: Bondurant G100 Registration required — https://go.unc.edu/elsivirome This is an in-person event only. It will be recorded via Lecture Capture. Advancing understanding of the human virome (all viruses that live in and on …
The third seminar in the Carolina Seminar Series: “Science meets society at the intersection between precision medicine and justice, equity, and inclusion.” Ensuring Fairness: At the Crossroads of Equity and Economic Considerations in Precision Medicine Virtual Event Date: Tuesday, March 26 Time: 12:00 pm—1:15 pm Please register at — https://go.unc.edu/sciencemeetssociety3 Efforts to expand access to …
The Impact of Dobbs on Emerging Reproductive Technologies —– Join us on Friday, March 8, 2024 at 12pm ET for the next ELSI Friday Forum session: The Impact of Dobbs on Emerging Reproductive Technologies, with panelists Sigal Klipstein, MD, FACOG (InVia Fertility Specialists; University of Chicago), Judith Daar, JD (Chase College of Law, Northern Kentucky University), and …
Twisted Helix: Can Public-Private Partnerships in Large-Scale Genomic Projects Be Fair and Equitable? —– Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research projects such as the Human Pangenome Reference Consortium, and the Earth BioGenome, Human Cell …
Polygenic Risk Prediction in Diverse Populations and Contexts: Scientific and Ethical Considerations —– The differential performance of polygenic risk scores (PRS) by population genetic background is a well-known scientific concern and one of the most important barriers to their equitable translation for clinical use. Not only must the social repercussions of how people are grouped …
The first seminar in the Carolina Seminar Series: “Science meets society at the intersection between precision medicine and justice, equity, and inclusion.” Empowering trust: Insights from Community Engagement Initiatives Community engagement continues to be a critical component in genomic medicine and precision health research where the overall goal is to improve health outcomes of communities. …
Join us on December 8, 2023 12:00 PM for the next ELSI Friday Forum: Affirming Sex and Gender Diversity in Genetics Practices, Policies, and Law: A Call to Action Join panelists: Kimberly Zayhowski, MS, CGC, and Kellan Baker, PhD, MPH, MA. Moderated by Mildred Cho, PhD. There are already many barriers to appropriate health care for transgender, …
Balancing Data Privacy and Data Sharing: Normative and Technical Approaches To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to individuals and groups, and threatens autonomy and control over data use. Data sharing policies, governance strategies and technical solutions have been …
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families participating in such studies also report variation, both in their expectations for the research and the impact its …
New ACMG Guidance on Carrier Screening: More or Less Equitable? Next-generation sequencing capabilities have enhanced general population carrier screening by expanding the number of genes and variants on carrier screening panels. Professional recommendations are shifting towards universal screening, that is: screening that is not limited to populations by race or ethnicity and more inclusive of …