March 19 | 12:00-1:00 pm ET / 9:00-10:00 am PT
Oversight of Human-Animal Chimera Research: Views of Scientists, Researchers, Oversight Committees, and the Public – REGISTER
Moderator: Mildred Cho
- Kaitlynn Craig: When Dogs Play Cards: Interviews with Scientists, Researchers, and Oversight Committee Members on Ethical Guidelines for Human-Animal Chimera Research
- Ben Wills & Isabel Bolo: Which Public, What Comments? An Analysis of Public Comments on Human-Animal Chimera Research Submitted to the National Institutes of Health
This initial series of discussions focuses on presentations that were originally accepted for the 2020 ELSI Congress (which was then canceled due to the pandemic). These presentations are now available as 15-minute videos. Please watch the videos you are interested in before attending the related discussion. They will not be shown during the discussion.
The presenters will answer questions about their research and take part in an open discussion with all attendees. Please bring your questions, join the discussion, and expect to network with your colleagues. We hope you will make new connections and start new conversations on ELSI research.
The schedule of the talks and a link to each video are below. Please register for each ELSIconversations event you would like to attend. Contact us at info@elsihub.org with any questions.
Please note: by registering for an ELSIhub event participants and attendees agree to abide by the ELSIhub Code of Conduct.
March 26 – Identifying Best Practices for Clinical Genetics Delivery – REGISTER
Moderator: Sandra Soo-Jin Lee
- Nora Henrikson: Patient and family preferences on direct contact by a health system to invite cascade screening
- Kelly Ormond: Defining the Critical Components of Informed Consent for Genetic Testing
- Natalie Pino: Racial and Ethnic Classification in the Clinic: Is it Just?
April 2 – Issues at the Intersection of Identity and Genome Science – REGISTER
Moderator: Mildred Cho
- Felicity Boardman: Human Germline Genome Editing and the Identity Politics of Genetic Disability
- Catherine Hammack-Aviran: Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship
April 16 – Challenges and Opportunities in Implementing Precision Medicine at the National Scale – REGISTER
Moderator: Sandra Soo-Jin Lee
- Katherine D. Blizinsky: Part 1. Ethical, Legal and Social Implications (ELSI) on the frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
- Subhashini Chandrasekharan: Part 2. Ethical, Legal and Social Implications (ELSI) on the frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
- Tierry M. Laforce: Using an implementation research tool to guide the implementation of non-invasive prenatal screening
- Mary A. Majumder: Part 1. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
- Amanda M. Gutierrez: Part 2. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
- Sara L. Ackerman: Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
- Sara J. Knight: Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges