About

Kriste Kuczynski is a Social/Clinical Research Specialist and has been employed in various research positions at UNC-Chapel Hill since 1998. She has served as a Research Assistant, Study Coordinator, and Program Manager. Most of the research projects she has worked on have been funded by the Ethical, Legal, and Social Implications (ELSI) of Genomics Program of the National Human Genome Research Institute (NHGRI). Currently, she also receives funding from the UNC School of Medicine’s Office of Research to manage the Center for the ELSI of Biotechnology (formerly the Center for Genomics and Society).

She has much experience in qualitative and empirical research, specifically in data collection, management, and analysis, as well as in dissemination, grant writing, protocol development, and study design.

Research studies she has worked on have covered a range of topics. They include the following:

• Beyond the Medical: The ELSI of Polygenic Scores for Social Traits
• Incidental Enhancement: Addressing a Neglected Policy Issue in Human Genome Editing
• Decision Support for Early Phase HIV Remission Trials
• ReCCAP UNC: Return to Campus COVID-19 Assessment Project for UNC-CH Employees and Trainees
• Program for Precision Medicine in Health Care: Precision Genomic Screening Initiative
• Center for Genomics and Society: A Center for Excellence in Ethical, Legal and Social (ELSI) Research
  • GeneScreen (a project of the Center which explored a wide range of ELSI issues raised by the prospect of applying a DNA sequencing technology to identify rare but clinically significant genetic variants in the general adult population.)
• Integrating Decision Making Studies into HIV Cure Trials: A real-time longitudinal assessment
• Keeping the promise of translational research: Will biobank specimens be used?
• Families’ Interpretations of Genetic Knowledge
• Fragile X Newborn Screening Study
• Family Adaptations to Fragile X Syndrome
• Family Life Project: Ethnography of Rural Communities, Families, and Young Children
• Durham Child Health and Development Study
• Welfare, Children and Families: A Three-City Study; Early Childhood Research Institute on Inclusion