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Home / Events
3 events found.

Events

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Today
  • February 2026

  • Fri 27

    Symposium – Beyond the Horizon: Charting the Next Era of Rare Disease Progress at UNC

    February 27 @ 2:00 pm - 5:00 pm
  • March 2026

  • Sat 28

    Raleigh Run for Rare 5k

    March 28 @ 9:00 am - 2:00 pm

    The National MPS Society will host a timed 5K run and 1 mile walk, beginning at 9 AM on Saturday, March 28.  The 1 mile walk will begin at 9:05 AM.  Packet pickup and day of registration will open at 7:30 AM.  A picnic for attendees and volunteers will be held after the race! This … Read more

  • May 2026

  • Mon 18

    Advancing Novel Surrogate Endpoints For Rare Disease Drug Development Workshop

    May 18 @ 9:00 am - 4:30 pm
    Virtual Event

    Advancing treatments for rare diseases requires innovative ways to measure success.  Join FDA, researchers, clinicians, and innovators for a free, one-day virtual workshop open to the public focused on emerging scientific and regulatory pathways for advancing surrogate endpoints in rare disease drug development. This workshop is being convened in support of the Rare Disease Endpoint … Read more

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