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ABGS at Hispanic Heritage Fiesta 2023 on September 16th

September 20, 2023
Members of the Age-Based Genomic Screening project volunteered at the 10th Annual Hispanic Heritage Fiesta 2023 in Siler City. This celebration is hosted by the Hispanic Liaison (El Vínculo Hispano), an organization focused on addressing the unique needs of the growing Hispanic population in North Carolina. We were glad to...

ABGS at UnityWalk 2023 on August 26th

August 30, 2023
ABGS attended the UnityWalk 2023 in Greensboro, NC. This event was hosted by the Faith Action Organization, New Arrivals Institute, North Carolina African Services Coalition, and more groups within the Greensboro Area focused on refugee and immigrant resettlement and holistic support. The Unity Walk and Festival is held annually in celebration of the...

Poster | ACMG 2023: Salt Lake City, Utah “Co-Designing Genetics and Genomics Educational Modules for Community Engagement”

March 14, 2023
The ABGS research team including the Community Research Board (CRB), co-designed educational modules to explain genetics concepts and engage a variety of community audiences including parents, guardians, and community members.

WebMD Article | “Should We Be Testing Everyone’s DNA?”

January 10, 2023
WebMD article about the potential benefits and challenges of population-level genomic screening featuring perspectives and quotes from Dr. Laura Milko.

Paper | Age-Based Genomic Screening during Childhood: Ethical and Practical Considerations in Public Health Genomics Implementation

January 1, 2023
This manuscript adds to the robust discussion around opportunities and challenges in application of genomic sequencing technologies to screen for actionable conditions in the healthy pediatric population. The ABGS approach stands in contrast to calls for using genome-scale sequencing in healthy newborns as part of newborn screening, but creates a...

Paper | Parental Guidance Suggested: Engaging Parents as Partners in Research Studies of Genomic Screening for a Pediatric Population

March 25, 2022
This paper highlights the process of engagement with the ABGS Community Research Board (CRB) and their active involvement in the Age-based Genomic Screening (ABGS) project since its inception. Powell SN, Byfield G, Bennetone A, Frantz AM, Harrison LK, James-Crook ER, Osborne H, Owens TH, Shaw JL, O'Daniel J, Milko LV....