The HTC is operating under normal conditions. Stay tuned to NBDF (https://www.bleeding.org/advocacy), HFA (https://www.hemophiliafed.org/our-work/advocate/), and BDFNC (https://bleedingdisordersnc.org/programs-events/advocacy/) for updates on advocacy and government affairs.
Takeda stated it would continue to supply both medications to current patients until inventory is depleted or expires in mid-2026. If you rely on one of these products, please reach out to your specialty pharmacy with any questions. You should have received a letter in the mail also. More information can be found at: https://www.bleeding.org/news/breaking-news-takeda-announces-discontinuation-of-two-hemophilia-treatments.
We are very concerned for those impacted by the historic flooding and devastation caused by Hurricane Helene. We hope all are safe. Please reach out to us via phone or mychart if there is anyway we can help or be of assistance. Please see these links for support and help, ways to donate to those …
The U.S. Food and Drug Administration approved Pfizer’s gene therapy for hemophilia B on Friday, the second such therapy for the rare bleeding disorder that typically requires regular infusions of a blood-clotting protein. Quick article for more information!
Shining a Spotlight on Living with Hemophilia by our very own Dr. Nigel Key!!
Parents of campers, head to www.CampCarefree.org/campers for a link to the application forms. Counselors & CITs candidates go here: www.CampCarefree.org/volunteer Note: Covid restrictions have been lifted this year, however vaccines are still STRONGLY recommended. And very IMPORTANT: everyone must ALSO complete and submit the required medical information forms, before you will be considered applied for …
The HTC–HHT retreat gave clinical and administrative staff the opportunity to gather, reflect, update one another and collaborate. We had a great time celebrating accomplishments and creating our goals for the future.
Raleigh Family Festival & Walk for Bleeding Disorders October 22, 2022, 9am-12pm Join our Team! UNC Tarhealers. We hope to see you there. Location: Lake Crabtree County Park, 1400 Aviation Parkway, Morrisville, NC 27560 Registration Deadline: 10/22/2022 12:00 PM 2022 Raleigh Family Festival & Walk – 2022 Raleigh Family Festival & Walk for Bleeding Disorders …