UNC investigators lead numerous research studies, including clinical trials, for persons with serious illness, and their families.  In addition to individual research projects, we also lead the Measurement Core of the Palliative Care Research Cooperative group – a nationwide interdisciplinary research network funded by NIH-NINR to advance palliative care science and improve care for people with serious illness.  Research is facilitated by collaboration and support across the UNC Health Affairs campus, including the North Carolina Translational and Clinical Sciences Institute, the Cecil G. Sheps Center for Health Services Research, UNC Center for Aging and Health, and the Lineberger Comprehensive Cancer Center.

UNC Palliative Care investigators conduct research to improve care and outcomes, including:

Palliative care for persons with Alzheimer’s disease and related dementias

Palliative and supportive care for persons with cystic fibrosis

  • Dellon EP, Helms SW, Hailey CE, Shay R, Carney SD, Schmidt HJ, Brown DE, Prieur MG. Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care. Pediatric pulmonology. 2018;53(9):1218-1224.
  • Farber JG, Prieur MG, Roach C, Shay R, Walter M, Borowitz D, Dellon EP. Difficult conversations: Discussing prognosis with children with cystic fibrosis. Pediatr Pulmonol. 2018;53(5):592-598.

Innovative models for palliative care in cancer

Measuring the quality of palliative and hospice care

Communication and decision making

Supporting parents and young families facing advanced cancer