During Rare Disease Week, Dr. Kim Stephens was on Capitol Hill in Washington, D.C., representing the UNC Muenzer MPS Research & Treatment Center and the broader rare disease community.
Advocacy is an important part of advancing research, improving access to care, and ensuring that the needs of individuals and families living with rare diseases are recognized at the national level.
Through participation in discussions with policymakers and stakeholders, Dr. Stephens helped highlight the importance of continued support for rare disease research, clinical care, and patient-centered initiatives.
Opportunities like Rare Disease Week provide a valuable platform to share the impact of conditions such as mucopolysaccharidoses (MPS) and reinforce the need for ongoing collaboration between clinicians, researchers, advocates, and decision-makers.
The Muenzer MPS Research & Treatment Center is proud to be part of these conversations and remains committed to supporting the rare disease community through clinical care, research, and education.